Sanofi company / Wilson / Therapeutics for Rare / Lilly / NNPDF Inc. / Genzyme / NPD Group / Dexter / National Niemann-Pick Disease Foundation Inc. / Coleman / Neglected Diseases Program / /
Continent
North America / /
Country
United Kingdom / Italy / Spain / Switzerland / Canada / United States / /
Currency
USD / / /
Event
Person Communication and Meetings / Business Partnership / Conference Call / /
Facility
University of California San Francisco / Sheraton Inner Harbor Hotel / Indian Trail / Michigan Center / University of Heidelberg / NIH Clinical Center / Garage Sale In Memory / University of Naples / Mary’s Hospital / University of Geneva / Corporate Headquarters / Eunice Kennedy Shriver National Institute of Child Health / NIH’s National Center / FORT ATKINSON PERMIT NO. / University School / Memorial Run Hughes Family / Albert Einstein College of Medicine / / /
IndustryTerm
Therapeutics for Rare and Neglected Diseases / extension protocol / treatment for a devastating disease / telephone consultations / online donations / treatment for Niemann-Pick disease / pharmaceutical / social media sites / /
MedicalCondition
ASMD Niemann Pick Disease / Niemann-Pick Disease Type C. These / Bogard Development/Rare Diseases / Rare Genetic Diseases / MA. The Genzyme Rare Disease / disease / rare and fatal genetic disease / Acid Sphingomyelinase Deficiency / Program Management/Rare Diseases / top Niemann-Pick Disease / B Niemann-Pick Disease / Niemann-Pick Disease / /
MedicalTreatment
enzyme replacement therapy / /
NaturalFeature
mountain St. Mary / mountain Sinai / Mt. View PTA / /
OperatingSystem
Microsoft Vista / /
Organization
University of Heidelberg / Patient Advisory Board / University of Heidelberg / Germany Michael / Marcia and Christa Parseghian Scientific Conference / NIH Clinical Center / Washington University School of Medicine / University of California San Francisco / University of Naples / Department of Pediatrics / Parseghian Foundation / National NiemannPick Disease Foundation / Scientific Advisory Board / Department of Biochemistry / Michigan Center / Eunice Kennedy Shriver National Institute of Child Health / Eunice Kennedy Shriver National Institute of Child Health and Human Development / NNPDF Board of Directors / NNPDF Research Committee / NNPDF’s Scientific Advisory Board / Kevin Eadie Foundation Sullivan Investment Club Naomi Tyrrell’s Birthday Mohegan School / TRND NPC / University of Geneva / NNPDF's Scientific Advisory Board / Medical Conference International Niemann-Pick Disease Alliance / NNPDF's SAB / NNPDF Scientific Advisory Board / Albert Einstein College of Medicine / Canadian Chapter / National Institute of Health / International Niemann-Pick Disease Alliance / Human Development / NNPDF SAB / Mt. Sinai School of Medicine in New York / Mt. Sinai and St. Mary’s Hospital in Manchester / NIH’s National Center for Advancing Translational Sciences / Post Office / Cause Frederick Dream Dinners Service / /
Person
Bill Pavan / Toni Mathieson / Angel Jacob / Nuria Carrillo-Carrasco / Lillian Klein Saeger / Pat Frenchick / Lluis Samaranch Gusi / Heiko Runz / Jill Flinton / Teji Singh / Ozmer / Edward H. Schuchman / Matthew Perugini / Ryan Kelly / Andrea Ballabio / Grant Recipient / John Edward / Pat Dragon / Michael Cordero / Michael Edward / Marc Patterson / Sumbad Golf Outing Katlyn Sumbad / Stacey Vorpahl Octob / Dillon Cornhole / Riley Gene Robbins / Monthly Family Night Josh Baker / Katlyn Sumbad / Edward H. Schuchman Postdoctoral / Wei Zheng / Nuria Carrillo / Naomi Grace Tyrrell / Daniel Flinton / Zoe Bachman / Adam Recke / Ashley Sims / Kevin Eadie / Maria Ledesma / Jacob Lee Brooks / Nicole Yanjanin / Steve Michael Ro / Lil Roy Teller / Leslie Hughes / Stacey Vorp / Peter Pentchev / Becky McGuire / Dan Ory / Chuck Finn / Alan Gilstrap / Joy Vander Wal / Charles Beckman Jr. / Mindy Fagan / Fort Atkinson / Cindy Parseghian / Jean Gruenberg / Emily Hrbacek / Ilona Scott / Kimberly Lilly / Homer Glen / Dorothea Maetzel / Riley Corbitt / Dillon Papier / Lauren Grodin / Trina Paulk / Trista Lindsey / Centro Biologia Molecular Severo Ochoa / Bryanna Desouza / Chris Austin / Sandra Cowie / Leslie Prescott-Cawlfield / Frederick Keys / Breann Chavez / Yasmin Markman / Christa Parseghian / Kathy Lane / Johnathan Spencer / Jean Vance / Mark Kao / Steven Silber / John Heiss / Steve Daitch / Forbes Porter / Taylor Marie Wauters / Dwayne Linkous / Deanna Bourgeault / Christopher P. Austin / Joshua Jaylon Garcia / Laura Vaughan / Hope Believing / Gabrielle Christine LaVerde / Sandie Morseth / Denny Porter / Xin Xu / Krystof S. Bankiewicz / Juan Marugan / Karen Sullivan / Adelaida Kay Van Meter / Steve Sturley / Damon Eli Cardinal / Robin Montvilo / Steve Walkley / Kevin Demeules / Barb Vorpahl / Andrew Munkacsi / Noel Martinez III / Mitchell Brubaker / Julia Kain / Karen Quandt / Monica Marie Amanda Taillefer / Tammy Vaughan / Patrick Gaffney / Holly Roberts / Brice Demeules / Virginia Grandpa Eultgen / Kaitlyn Kay Bourgeault / Brenda Teller / Willow Wicks / Elissa Miller Visoky / Charles Vite / Melissa Higgins / Liz Ottinger / Lily Anna Beaupre / Erin Roberts / Lisa Chavez / Amber Casey / Marcia Parseghian / Nadine Hill / John McKew / James Laffoon / Chris Ralston / NADINE M. HILL / / /
Position
Executive Director / senior investigator / Secretary / Co-Worker / Vice-Chair / Pasta Fundraising Candle Fundraiser / Porter / principal investigator / Treasurer / Shrine Cub Fundraiser / Director E-mail / Board Member / Teller / Medical Director / Board Chair / Fundraiser / Hunter / Mayor / staff physician / clinical director / Director / Co-Chair / Chair / Porter / principal investigator / M.D. / staff physician / NNPDF Board Chair / /
Product
Yasmin / 20th Annual NNPDF / /
ProgrammingLanguage
Java / FL / /
ProvinceOrState
California / Arizona / Ontario / Alberta / Texas / New Jersey / Illinois / Tennessee / Pennsylvania / Iowa / Massachusetts / New York / Connecticut / Washington / Michigan / Missouri / Maryland / Florida / North Carolina / /
SportsEvent
October Awareness Co-Worker Karen Pallies Sandra Neale Birthday Party B’nai Israel Carnival Dillon Papier Charity Golf Tournament / /
NEWS Niemann-Pick SPRING 2013 | VOLUME 1, ISSUE 48 A publication of The National Niemann-Pick Disease Foundation (NNPDF)