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Medicine / Niemann–Pick disease / National Institutes of Health / Niemann-Pick disease /  type C / Health / Lipid storage disorders / Rare diseases


Niemann-Pick To l l F r e e[removed][removed]S U M M E R[removed]
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Document Date: 2009-06-19 15:37:49


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City

Seattle / Eureka / Shelton / New York City / Milwaukee / Fort Atkinson / /

Company

Program Management Corporation / NNPDF Inc. / NPD Group United Kingdom / GENZYME / Actelion Ltd. / ACTELION PHARMACEUTICALS LTD. / Management Corporation ACTELION PHARMACEUTICALS LTD. / /

Continent

Europe / /

Country

Switzerland / United States / Canada / United Kingdom / Scotland / /

Currency

USD / /

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Event

FDA Phase / /

Facility

Mt. Sinai Medical Center / National Institute of Health / Children's Hospital of Pittsburgh / University of Washington / /

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IndustryTerm

medical and educational information / Treatment for Niemann-Pick Disease / family support services / compassionate services / referral services / insurance / healthcare doctors / travel mugs / Web site design / final product / biopharmaceutical / public relations media / Web site committee members / media tool / Therapeutics for Rare and Neglected Diseases / family services / Family networking / WEB SITE We / internet usage / /

NaturalFeature

Mt. Sinai / /

Organization

University of Washington / National Institute of Health / NNPDF BOARD OF DIRECTORS ANNUAL / Internal Revenue Service / KEEP AT IT / Children's Hospital of Pittsburgh / NNPDF Board / NNPDF Central Office / federal government / Vice / Mt. Sinai Medical Center / BOARD OF DIRECTORS ANNUAL / FDA / Post Office / NNPDF’s Scientific Advisory Board / /

Person

Timothy / Rhonda Brown-Kehoe / Raynard S. Kington / Tim Quandt / Alexandra Conniff Darrile Papier Sandra / Melanie Dawn Walters / Leslie Barnette Overstreet Hayes / Betsy Bogard / Barb Vorpahl / Peter G. Pentchev / Susan Green Holly Roberts Ryan / Lorna Tyrell / Jonathan D. Shearer / Karen Quandt / Washington Carl Wayne Moore / Doug Pease Susan Green Holly / Gene Quandt / Tammy Vaughan / Jessica Cristian / Erin Starrett / Emily Hrbacek / LY SE RV / Nadine Hill / Ty / Forever Ty / NADINE M. HILL / /

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Position

AND ADVOCACY Our Coordinator / renowned scientist / Director of Family Services E-mail / scientist / Secretary / FUNDRAISER / Acting Director / Coordinator / Director / Treasurer / Chair / King / /

Product

Zavesca / Treatment / Europe / /

ProvinceOrState

Wisconsin / Connecticut / Missouri / /

Technology

drug development / /

URL

www.nnpdf.org / www.seattledoubletree.com / /

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