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Rare Disease UK response to the Scottish Government Health and Social Care Directorates on the consultation on the UK plan for rare diseases About us: Rare Disease UK (RDUK) is the multi-stakeholder alliance for people w
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Document Date: 2012-05-29 09:15:24


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City

Edinburgh / /

Company

Optimising Resources / Rare Disease UK / /

Continent

Europe / /

Country

Northern Ireland / United Kingdom / Scotland / Wales / /

/

Event

Reorganization / /

Facility

Scottish Rare Disease UK University of Edinburgh / Rare Disease UK University of Edinburgh / Royal College of General Practitioners / Introduction Rare Disease UK University of Edinburgh / /

IndustryTerm

commissioned services / well organised services / expert clinical systems / clinical systems / clinical management / pharmaceutical / secondary healthcare professionals / social services / access services / e-learning / definitive solution / healthcare professional / healthcare providers / /

MedicalCondition

each rare disease / rare diseases / how rare disease / chronic rare disease / final rare disease / rare cardiac diseases / different rare diseases / diagnostic delay Rare diseases / disease / individually rare diseases / multi-system rare disease / rare disease / how rare diseases / UK rare disease / rare disorders / Scotland rare disease / non-genetic rare diseases / common rare disease / /

Organization

Genetic Alliance UK / Neurological Alliance Scotland / National Genetics Education and Development Centre / Royal College of General Practitioners / Scottish Government / UK National Screening Committee / NHS Commissioning Board / National Services Division / University of Edinburgh / European Commission / NHS / Long Term Conditions Alliance / /

/

Position

Minister / named care coordinator / /

Technology

GPS / http / e-learning / /

URL

http /

SocialTag