Royal College of Paediatrics / Royal Australasian College of Physicians Division / College To / /
IndustryTerm
online chat/communities / moderated on-line forums / pharmaceutical industry / parent support services / health services / clinical services / web-based forum / appropriate health services / on-line videos / diagnostic services / telephone help lines / integrated information services / similar services / Patient support services / telephone help line / /
Organization
Contact-a-Family Head Office in London / SMILE Foundation / Rare Diseases UK Unit / Australian Paediatric Surveillance Unit / Royal Australasian College of Physicians Division of Paediatrics and Child Health / Grants Management Board / Royal College of Paediatrics and Child Health / European Commission / British Paediatric Surveillance Unit / Unincorporated Association Board / Board of Trustees Parent Panel CEO Donations Volunteers / Contact-a-Family / French Government Directorate / Coalition of National Rare Diseases / European Union / Health INSERM European Union Steering Committee / European Organisation for Rare Diseases / Carer Advisory Committee / Royal College of Paediatrics / NHS / BPSU’s Executive Committee / Advisory Committee / Universities and RACP Division of Paediatrics and Child Health / Wandsworth Borough Council / RCPCH’s Parent and Carer Advisory Committee / LONDON SW17OLA Governance Funding Model Registered UK Charity / Wandsworth Project / /
Person
Yvonne Zurynski January / Ann Sanson / Alastair Kent / / /
Position
Advocate / Scientific Coordinator / consumer representative / coordinator and family worker / Young People Participation Manager / manager / Executive / Advocate for the development / Manager RCPCH Parent / /
Information on patient support services for people with rare diseases and their clinicians