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1 VI ICORD, Buenos Aires[removed]VI ICORD, Buenos Aires[removed]VI ICORD, Buenos Aires 2010
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Document Date: 2010-05-24 03:36:11


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City

Washington / Therapies / Rosario / Buenos Aires / Fronteras / Rome / Atlanta / Cardiologia I. Chavez / GEISER / CARTAGENA / Marle E. Haffner / Executives / CARTAGENA DE INDIAS / Paris / Stockholm / Javeriana / Mendoza / of education / Belgrade / CASES OF MUCOPOLYSACCHARIDOSIS / /

Company

ICORD / SAIC / Gemzyme Corporation / BioMarin / High Cost / EuroGentest Network / National Registry of Myotonic Dystrophy / Pearson / Belgium Genzyme Corporation / Alexion / Buenaventura / Celgene / DuchenneConnects / Grees SA / Genzyme Corp. / Steering Group / /

Continent

Europe / /

Country

Brazil / United Kingdom / China / Denmark / Italy / Mexico / Chile / Columbia / Argentina / Spain / Switzerland / Netherlands / Colombia / France / Japan / Serbia / Sweden / New Zealand / Belgium / United States / /

Currency

pence / /

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Event

FDA Phase / /

Facility

BREAKFAST Mattisse Ballroom / University Children’s Hospital / Mattisse ballroom / Open Discussions Doré ballroom Coordinators / Child Health Care Institute of Serbia / University of Tokyo / Mattise ballroom Caribbean Meeting / COFEE BREAK Mattisse ballroom / Garrahan Hospital / Working Groups Doré ballroom Coordinators / Doré ballroom Industry / University Javeriana / Doré ballroom / Institute Leloir / National Institute of General Medical Science / Hotel Areas / Switzerland University of Geneve _Bernardino.Fantini@unige.ch_ Alessandro Ferrerira Dos Nascimiento / University of Cartagena / Bladder Extrophy-Epispadias Complex / Institute of Molecular Genetics / Doré ballroom Coordinators / Doré ballroom General Coordination / Institute of Genetics / University of Geneve / Doré ballroom Diagnosis / Matisse ballroom Coordinators / Karolinska Institute / CANGURU Institute / Doré ballroom Stephen C. Groft / Research Doré ballroom / /

IndustryTerm

sustainable food safety / local food / pharmaceutical industry / food components / TREATMENT OF GENETIC AND RARE DISEASES / treatment of genetic diseases / genetic services / food wholesomeness / food security / transportation / approaches and tools / pharmaceutical sector / dairy products / prevention of obesity / orphan products / food consumption / morbidity information systems / treatment of rare diseases / food sugars / persistent food contaminants / earphone equipment / pharmaceutical industries / healthcare / pharmaceutical / preventive medical management / care for patients with rare diseases / non-existent diagnosis systems / pharmaceutical laws / classification systems / /

MedicalCondition

inositol deficiency / Birth Defects / hereditary / skeletal and mineral metabolism rare disorders / different diseases / Myotonic Dystrophy / diabetes / diseases / deficiency / disorders / MS disease / neural tube defects / LANGERHANS CELL HISTIOCYTOSIS / common diseases / Disease / Neglected Diseases / Rare Diseases / gastroschisis / diaphragmatic hernia / common thalassemia mutations / disorder / National Org. of Rare Diseases / Thalassemia / E toward gastroschisis / non-communicable chronic diseases / _fundgeiser@yahoo.com.ar_ Rare diseases / epidemic / zinc deficiency / holoprosencephaly / obesity / rare disorder / Cystic fibrosis / hypertension / several birth defects / RARE BIRTH DEFECTS / Multi-systemic diseases / /

MedicalTreatment

counseling / Physical therapy / /

OperatingSystem

Dos / /

Organization

Chilhood Cancer Research Unit / CANGURU Institute / Mexico Mexican Society of Pediatry / USA Genetic Alliance / Center for Bioethics / Argentinean Society of Pharmaceutical Medicine / Peking Union Medical College / Universidad Javeriana / Department of Women / Topic Advisory Groups / Spain Rare Diseases Research Institute Instituto / FDA / National Ministry of Education / Committee for Orphan Medicinal Products / University of Geneve / LA&C / Food and Drug Administration / GEISER Foundation / Ibero-American Society of Scientific Information / Brazilian Society / National Organization for Rare Disease / Karolinska Institute / EU Rare Diseases Task Force / Food Safety Authority / Garrahan Hospital / Embassy of the United States of America / Childhood Cancer Research Unit / New Zealand Organization of Rare Diseases / Columbia Instituto / France Foundation / Scientific Secretariat / Argentinean Academy of Pharmacy and Biochemistry / ICORD mission / Buenos Aires Velez Sarsfield Club / Rare Diseases Research National Institutes of Health Department of Health and Human Services Bethesda / Latin American Society for Medical Research / Embassy of the Kingdom of Sweden *COPIDIS / Dutch Steering Committee on Orphan Drugs / Argentina Member-at-Large Erik Tambuyzer Belgium Member-at-Large Kerstin Westermark Sweden Auditors Anna-Lisa Trama Italy Barbara Wuebbels USA ICORD Mission / Center for Bioethics Chinese Academy of Medical Sciences / University of Tokyo / Institute of Genetics and Innate Metabolism Errors / Argentinean Society of Rheumatology / European Organization for Rare Diseases / Genetic Alliance / National Organization of Rare Diseases / European Commission / Argentinean Society of Clinical / National Ministry of Science / Technology / and Productive Innovation / European Union / ICORD Executive Board / France Gis-Institut / Rare Disease Task Force / Ministry of Health / National Institute of Health / Center for Bioethics/Basic Medicine / Argentinean Society of Dermatology / American Health Organization / Brazilian Congress / Centers for Disease Control and Prevention / Congress / USA Office / S. Food and Veterinary Toxicology Unit / Mexican Pediatric Society / Government of the City of Buenos Aires / Denmark European Medicines Agency / Argentinean Society of Cardiology / /

Person

Virginia Llera / Luis Alejandro Barrera / Yukiko Nishimura / Maria Laura Tinelli / Blanca Vazquez / Alejandra Menéndez / Timothy Coté / Tomás Pullido Zamudio / Manuel Posadas / Gala Dinner / John Forman / Erick Tambuyzer / Emilio J. A. Roldán / Annika Larsson / Peter Salstonstall / Désireé Gavhed / Peter Saltonstall / Salud Carlos III / Virginia A. Llera / Ana María Martins / Marlene Haffner / Stephen C. Groft / Sonia van Weely / Olga Pleguezuelos / Miguel Angel Ruiz Carabias / Catarina Edfjäll / Alberto Mantovani / Catarina Edjfäll / Domenica Taruscio / Julie Wilson / Luis Guillermo Velez / Tomas Pulido Zamudio / Ronald Reagan / Vukan Cupic / Erik Tambuyzer / Bernardo Fantini / Sharon F. Terry / Sharon F. Back / Fran Olson / Karina Brito / Luis Guillermo Vélez / Kurt Kleefeld / Marlene E. Haffner / Luis Carbajal / Howard H Yuwen / Terry Sharon / Alessandro Ferrerira Dos Nascimiento / Ana Maria Martins / Timothy Cote / Penny Oakley / Verónica García / Jan-Inge Henter / Alessandro Ferreira / Xiao Mei Zhai / Rita Bianchi Tanti / Carlos Correa / Marco Antonio Nuñez Lozano / Kerstin Westermark / Barbara Wuebbels / Wilson Caparrós Wanderley / Sophie Koutouzov / Karina Back / Christopher Cheney / Segolene Aymé / Cecilia Front / Vilma Martinez / Virgina Fano / Ann Ist Super.Sanità / Raquel Sarangello / Área Alto Costo del / Virginia Fano / Virgina A. Llera / Miguel Angel Ruíz Carabias / Fernando Royo / María Laura Tinelli / Wilson Caparros Wanderley / /

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Position

General / Secretary / Ambassador / Vice President / Latin America / Treasurer / Chairperson / representative / Hb / General Information 61 Palais Rouge / Doré ballroom Coordinator / Argentinean plastic artist / Doré ballroom General / / President / Professor & Executive Director / head / group coordinator / general public health interest / Major / specialist / Chairwoman / orphan products Coordinator / Coordinator / Director / General Secretary / Fisher / Doré ballroom Chair / Private / judge / /

Product

Supports / indomethacin / prednisone / ORPHAN DRUGS / ntd / MG P20 Ohno / folic acid / vitamin A / Orphan Drug / P14 / OD / R141 / /

ProvinceOrState

North Dakota / Buenos Aires / Indiana / /

PublishedMedium

Endocrinology / /

Region

Latin America / Mediterranean / Caribbean / /

Technology

Genetic Engineering / Alpha / Av / 2010 PROTOCOL / production technologies / electrophoresis / Drug Development / /

URL

http /

SocialTag