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European Organization for Rare Diseases / Rare diseases / Epidemiology / Medical ethics / Orphanet / Patient advocacy / Cystic fibrosis / Health / Medicine / Science


08[removed]00 Registration General Assembly: Business Agenda •
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Document Date: 2014-04-24 02:57:00

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File Size: 1,30 MB

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City

Mukoviszidose eV / Maladies Lysosomales / Cambridge / Frambu / Orphanet / Brussels / FEDER / Paris / Sanità / ACHSE / /

Company

EURORDIS Key / /

Continent

Europe / /

Country

Germany / Norway / France / Italy / United Kingdom / /

/

Facility

Newcastle University / EURORDIS I. Capacity building / The EMBL-European Bioinformatics Institute / /

IndustryTerm

Rare Disease therapies / Rare Disease Care / advocacy tool / /

MedicalCondition

Rare Diseases / Rare Disease / Epidermolysis bullosa / /

Organization

Behçet Syndrome Society / Barcelona Office / Registration General Assembly / Newcastle University / EMBL-European Bioinformatics Institute / UK Rapporteur / Research Centre / AKU Society / Cystic Fibrosis Association of Ireland Workshop Integration of Rare Diseases / Romanian Alliance for Rare Diseases / Committee for Orphan Medicinal Products / /

Person

Denis Costello / Andreas Reiman / Nick Sireau / Anne-Sophie Lapointe / Cristina Morciano / Raquel Castro / Jade Moderator / Myriam de Chalendar / Pauline McCormack / François Houÿez / Rob Pleticha / Yann Le Cam / Juliette Senecat / Paola Laricchiuta / Richard West / Christine Mundlos / Anna Kole / Simon Woods / Eric Low / Pauline Evers / Avril Kennan / Alba Ancochea Díaz / Katie Murphy / Maria Claret / /

/

Position

speaker / Chief Executive Officer / Chief Executive Officer / EURORDIS Key speaker / /

URL

www.eurordis.org / /

SocialTag