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Science / Rare Disease Day / Health economics / Medical terms / Rare diseases / European Organization for Rare Diseases / Orphan drug / Orphanet / Disease / Health / Medicine / Epidemiology


Document Date: 2011-12-19 09:04:26

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City

Luxemburg / /

Company

DoHC Steering Group / Fighting Blindness / Support & Empowerment Sub Group / Medical Research Charities Group / Support & Empowerment Subgroup / European Reference Networks / EURORDIS Lesley Green / Steering Group / National Steering Group / Irish Times / /

Continent

Europe / /

Country

Malta / Ireland / /

Currency

EUR / /

/

IndustryTerm

care for rare diseases / health care services / care for people with rare disease / pharmaceutical / e-newsletter / healthcare professionals / suitable healthcare pathways / /

MedicalCondition

rare diseases / Retinal Diseases / Parkinson / Alstrom Syndrome / Blindness / Metabolic Diseases / rare disease / diseases / Cam / Cystic Fibrosis / /

MedicalTreatment

counselling / /

Organization

Steering Group and Taskforce / Genetic and Rare Disorders Organisation / Council of Ministers / European Parliament / European Union Committee of Experts / civil society / Rare Diseases Steering Committee / Oireachtas / European Commission / European Union / Irish Cancer Society / Department of Health / Rare Disease / European Committee of Experts / charged with aiding the European Commission / /

Person

Paola Testori-Coggi / Despina Spanou / John Dalli / Mars di Bartolomeo / John McCormack / Avril Daly / Taskforce Volume / Children / Joanne Hunt / Tony Heffernan / John Devlin / Barosso / /

Position

Representative & Chairman / President / Minister / Minister of Health for Luxemburg / Deputy Chief Medical Officer / Director General / CEO / Chairman / Health Commissioner / Special Advisor to Commissioner Dalli / Commissioner / Minister of Health / /

ProgrammingLanguage

PHP / /

PublishedMedium

the Irish Times / The Voice / /

Technology

PHP / drug development / /

URL

http /

SocialTag