When Caring is not Enough Sharing May Give Us Answers A PMD Patient Registry - Pelizaeus–Merzbacher disease - Document - PDFSEARCH.IO

First Page	Meta Content
	When Caring is not Enough Sharing May Give Us Answers A PMD Patient Registry Add to Reading List Document Date: 2013-11-18 15:20:02 Open Document File Size: 35,45 KB Share Result on Facebook City Washington / D.C. / / / Event Person Communication and Meetings / / Facility Children's National Medical Center / / IndustryTerm invaluable research tool / secure Internet questionnaire / / MedicalCondition disease / Rare disease / / Organization Children's National Medical Center / PMD Foundation / / Person Adeline Vanderver / Daniel Keys Moran / Don Hobson / Amy Pizzino / / / Position researcher / Board Chair / Chairman / / SocialTag Pharmaceutical industry Clinical trial Design of experiments Drug discovery Pharmacology Disease registry Psychotic depression Pelizaeus–Merzbacher disease Medicine Health

When Caring is not Enough Sharing May Give Us Answers A PMD Patient RegistryAdd to Reading List