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Adrenoleukodystrophy / Leukodystrophies / Kennedy Krieger Institute / Adrenomyeloneuropathy / Hugo Moser / Health / Rare diseases / Peroxisomal disorders


Paula K. Brazeal, President The United Leukodystrophy Foundation was founded in 1982 with a mission dedicated to helping children and adults who have leukodystrophy and assisting the family members, professionals, and s
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Document Date: 2014-12-04 01:12:59


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City

Philadelphia / Sycamore / Amsterdam / Baltimore / /

Company

Rare Disorders Inc. / /

Continent

America / /

Country

United States / /

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Facility

M.D. Kennedy Krieger Institute / BA Kennedy Krieger Institute / Medical College of Virginia Richmond / Ph.D University of Texas Galveston / Ph.D University of Amsterdam Amsterdam / Ph.D Free University Hospital / Children’s Mercy Hospital / Children's Hospital of Philadelphia Philadelphia / Ph.D Jefferson Medical College / Ph.D University of California Los Angeles / /

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IndustryTerm

oil / /

MedicalCondition

disease / Adrenomyeloneuropathy / genetic disorder / Addison’s disease / Adrenoleukodystrophy / MS / /

MedicalTreatment

Bone Marrow Transplant / /

Organization

Institut Bonn / Children’s Mercy Hospital Kansas City / Hospital of Philadelphia Philadelphia / Harvard Medical School Boston / United Leukodystrophy Foundation / National Organization for Rare Disorders / INDEPENDENT SECTOR American Society of Human Genetics / Scientific and Medical Advisory Board / University of California Los Angeles / University of Amsterdam Amsterdam / University of Texas Galveston / Medical & Scientific Advisory Board / Medical College of Virginia Richmond / Medical Advisory Board / /

Person

Timothy R. Brazeal / Virginia Volkmar Gieselmann / Wolfgang Köhler / Tim Conway / Edward Kaye / Paula K. Brazeal / Reuben Matalon / Ann Moser / William B. Rizzo / Charles Peters / Howard / /

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Position

Vice Chairman / President / Exec. / Consultant / /

ProvinceOrState

Pennsylvania / Maryland / Illinois / Mississippi / Massachusetts / /

Technology

MRI / /

URL

www.ulf.org / /

SocialTag