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Leukodystrophies / Lipid storage disorders / Peroxisomal disorders / Krabbe disease / Canavan disease / Hugo Moser / Adrenomyeloneuropathy / Pelizaeus–Merzbacher disease / Myelin / Health / Rare diseases / Biology


[removed]ULF Fall-Winter Newsletter
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Document Date: 2014-12-03 09:49:52


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City

Albany / Washington DC / Bonn / Vienna / Galveston / Minneapolis / Boston / Baltimore / New York / Madison / /

Company

ALD Connect / /

Country

Netherlands / Canada / Germany / Austria / United States / /

Currency

USD / /

/

Facility

John Hopkins University / University of Nebraska Medical Center / Embassy Suites hotel / Inner Harbor / Amster dam / Wilhelms University / Hospital National Medical Center / Kennedy Krieger Institute / Embassy Suites / /

IndustryTerm

therapy for Canavan disease / long chain / imaging / treatment of Canavan disease / chemical chaperone / Family networking / chemical compounds / program services / /

MedicalCondition

neurologic symptom / Alexander disease / seizures / stroke I / adrenomyeloneuropathy / brain disease / 4H syndrome / white matter disease / delayed puberty / severe disease / MRI-detectable white matter disease / adrenal insufficiency / infantile Krabbe disease / Zellweger spectrum disorders / ADDH / stroke / Canavan disease / gross tremor / skin disease / diseases / Hypogonadotropic Hypogonadism / EA RS2-related deficiency / disorders / slowly progressive disease / ASPA deficiency / genetic deficiency / Krabbe disease / learning disability / peroxisome biogenesis disorders / probable peroxisome biogenesis disorder / neurologic dysfunction / demyelination / neurologic symptoms / Ataxia / brain pathology / Acetate deficiency / disease / inflammatory demyelination / hereditary spastic paraplegias / Hypodontia / Pelizaeus-Merzbacher disease / DA RS-related deficiency / /

MedicalTreatment

bone marrow transplant / gene therapy / /

NaturalFeature

United Leukodystrophy Foundation Fall / Leukodystrophy Foundation Fall / /

Organization

Medical School / ULF and ALD Connect / Texas Medical School / ULF / Hospital National Medical Center / Intraventricular administration / FDA / University of Nebraska / Kennedy Krieger Institute / Nebraska Medical Center / John Hopkins University / Massachusetts Medical School / Medical & Scientific Advisory Board / /

Person

Kathy Zackowski / Matthias Eckhardt / Ann Moser / Nancy Braverman / Hugo Moser / Marjo van der Knaap / Robert Rauner / Genevieve Bernard / Joseph Changle / Michele Caggana / Gustavo Maegawa / Peter Barker / Sakkubai Naidu / Walter Hubbard / Ann Ar / Johannes Berger / Eichler / Guangping Gao / Bob Rauner / William B. Rizzo / Adeline Vanderver / Ulrike Schrifl / Troy Lund / William Kintner / Reuben Matalon / Ian Duncan / Colleen Kintner / Feany / /

/

Position

President / Secretary / Directors President / Treasurer / aska Vice President / Officer / moving forward / member of the board of directors / Director / Chair / /

ProvinceOrState

Minnesota / Michigan / Wisconsin / Maryland / /

Technology

high-throughput screening / stem cells / drug screening / apoptosis / drug discovery / spectroscopy / transplantation / MRI / gene therapy / DNA sequencing / gene delivery / /

URL

www.igive.com/ULF / /

SocialTag