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Rare diseases / Porphyria / Acute intermittent porphyria / Erythropoietic protoporphyria / Tetrapyrroles / Porphyrin / Sulfonamide / Rare Diseases Clinical Research Network / Afamelanotide / Chemistry / Porphyrias / Health


September, 2010 Erythropoietic Protoporphyria (EPP) Clinical Trials — 83 Research Volunteers APF members throughout the country have volunteered as research patients for the EPP clinical trials with afamelanaotide, no
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Document Date: 2014-02-26 18:34:00


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City

Houston / Oxford / Tokyo / Salt Lake City / Charlotte / Lyon / New York City / Orlando / Galveston / Boston / Newport / Reston / /

Company

Twitter / Facebook / Karen / The APF / CNN / DNA Laboratory / Porphyria Founda / /

Country

Japan / United States / Ukraine / /

Currency

USD / /

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Event

Employment Change / FDA Phase / Person Communication and Meetings / /

Facility

UTMB Porphyria Center / University of Alabama / Wendell Hall / University of Texas Porphyria Center / University of Utah / One laboratory / Haynes Convention Center / University of Mississippi / University of Texas Medical Branch / University of California / Carolyn W. Hall / Salve Regina University / Porphyria Center / Orange County Convention Center / Carolinas Healthcare Center / Gaylord Hall / /

Holiday

Corpus Christi Day / /

IndustryTerm

media attention / food / energy / healthcare professionals / social networking / chemical element / hemostatic and vascular systems / sulfonamide chemical / biotechnology / life-giving chemicals / natural products / cancer treatment / chemical molecule / chemicals containing sulfur atoms / social networking program / informal networks / solar energy / /

MedicalCondition

allergies / Rare Diseases / thus promoting porphyria / acute intermittent porphyria / illness / blood disorders / pneumonia / cancer / drug-induced porphyria / human porphyria / acute porphyria / Erythropoietic Protoporphyria / disorders / Desnick New Dean Porphyria / lymphoma / Renowned porphyria / own porphyria / nausea / skin rash / photosensitive and difficult porphyria / Congential Erythropoetic Porphyria / porphyrias / porphyria / common diseases / rarest porphyria / disease / American Porphyria Founda-tion / rare disease / sickness / pain / acute porphyrias / largest liver disease / anemia / /

MedicalTreatment

antibiotics / /

NaturalFeature

Discovery Health Channel / /

Organization

University of Texas Medical Branch / University of Utah / Salt Lake City / USDA / UTMB Porphyria Center / American Association for the Study of Liver Disease / Carolinas Healthcare Center / American Porphyria Foundation / University of Alabama / Birmingham / International Congress / Mount Sinai School of Medicine / Salve Regina University / University of California at San Francisco / APF Scientific Advisory Board of Porphyria Experts and Protect / University of California / San Francisco / University of Alabama at Birmingham / APF Scientific Advisory Board / University of Texas Porphyria Center / National Institute of Health / International Society / University of Mississippi / American Society of Hematolgy / Mount Sinai Medical School / Dartmouth Medical School / /

Person

Louise H. Davis / Lisa / Marisha Balwani / James Kushner / Nicole Brooks / Dean / Ashwani Singal / Haley Eubanks / J.R. Bloomer / Karl Anderson / Chelsea Kanskar / Chao / Lesley / Ann Warnke / Elizabeth Pettit / Rob Saupe / Denise Byrd / Mike Kenworthy / Craig Leppert / Cliff Walk / Chul Lee / Herbert Bonkovsky / Theresa A Brett / R.J. Desnick / Eric S. Gray / Ralph Gray / Robert Desnick / Rudolf Pillmeier / K.E. Anderson / Joseph Bloomer / Lawrence Lui / D.M. Bissel / Doug / FREE / Gabby Cochrane / Montgomery Bissell / Desiree Lyon Howe / John Phillip / Sylvia Bottomly / Denise Pillmeier / Sanja Guptha Anderson Cooper / J.P. Kushner / Irina Jacobs / Martha Atkins / Bruce Wang / Aubrey / Karen Eubanks / Brenden McGuire / Vincent K. Farina / Fred L. Gray / Annie Pangle / /

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Position

Executive Director / physician / Co-Chairman / attorney / Principal Investigator / bookkeeper / class teacher / fundraiser / coordinator / writer / Professor of Genetics / Dean / Co-Chairman / Research Consortium / member / Executive Director of the American Porphyria Founda-tion / /

Product

Porphyria Live DVD / SCENESSE® / /

ProgrammingLanguage

ABC / /

ProvinceOrState

Virginia / Alabama / Michigan / Utah / Rhode Island / Mississippi / California / Texas / Florida / /

RadioStation

7 What / /

SportsEvent

NASCAR / /

TVShow

Mystery Diagnosis / /

Technology

diagnostic tests / Genomics / biotechnology / related technologies / /

URL

www.porphyriafoundation.com / www.aubreybrooks.com / www.porphyriafoundaton.com / http /

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