UCSF Medical Center / APF / APF Patient Advisory Committee / Liver Center / Physicians for Acute Porphyrias / International Congress / US Federal Reserve / FDA / NYC / National Institute of Health / Texas hospital / Porphyria Research Consortium / EPP / University of Texas Medical School / Galveston Porphyria Center / Congress / American Society of Hematology Education Program / Scientific Advisory Board / school board / /
Person
Amy Chapman / Elizabeth H Thompson / Sarah Sundblom / Laurie Hanson / Gaylene Parman / Craig / Andrea Pagano / Jennifer R Ewing / Rocco Falchetto / Dave McCrae / Susan Bardsley / Monica Fleegel / Linda Nagin / William Querbes / Kathleen McGuckin / James McGuckin / Gary E Eyster / Karl Anderson / Kathleen Toelkes / Sharon Charney Holtzinger / Ryan Caballes / John Phillips / Richard J Drew / Larry Pritchard / Diana Parish / Ann S Carson / Dean Puccia / Patricia Woolard-Janes / Michael Drew / Valine Jensen / Herbert Bonkovsky / Pat / Sylvia Bottomley / Emmy Blume / Janeen / Wayne R Whittenburg / Mary Ann M Kopie / Rita / Kris Blume / Frank L Feczko / Shawn Willis / Lielle Ovadia / Megan Parish / Manisha Balwani / Barbara Fielitz / Robert Desnick / George III / Lynne M Murray-Gray / Lee Ann / Fred L Gray / Jamie Whittenburg / Alessia Callahan / Robert P Quigley / Jr. / Patricia W Farnan / Linda Peterson / Joseph Bloomer / Tobey Reichman / Vasco L Walton / Robert Zieles / Suzette Frazzini / Jocelyn Whittenburg / Montgomery Bissell / Donna Pagano / Tom / Victoria Harrold / Matthew Brown / Desiree Lyon Howe / Ralph M Gray / Arielle Ovadia / Charlotte Beck / Mary Frances Donnelly / Addie / Peter Tishler / Jasmine Barmine / Candace Johnson / Jessica Hawkins Ivey / Robert McGuckin / Stephanie Frazzini-Rushwin / Terri Easterwood / Anne T Wilson / Mary B Hargett / Ruth Wilson / Norma Brown / Warren Hudson / Karen Eubanks / Michael Pagano / Melissa Nagin / / /
Position
study coordinator / over the phone / Executive Director / President / IT specialist / physician / Chief / King / Director of the National Institutes of Health / hospital/physician/wholesaler / Bishop / administrator / representative / Nursing Clinical Manager in the perioperative division / Director of Human Resources / wholesaler / fundraiser / Chief of Gastroenterology / /
Product
Afamelanotide / /
ProvinceOrState
Minnesota / Alabama / Louisiana / New York / Washington / Michigan / Texas / New Jersey / /
Research: The Key To Your Cure! The Porphyria Research Consortium has won funding from the government to perform research, which it is on-going NOW. However, the researchers (shown below) need far more volunteers to con