Houston / Chicago / Paducah / Salt Lake City / New York / /
Company
Clinuvel Pharmaceuticals / Ovation Pharmaceuticals / ARUP Laboratories / All About / Panhematin / Lundbeck Inc. / Amazon.com / /
Continent
Europe / /
Country
Philippines / United States / / /
Event
FDA Phase / Person Communication and Meetings / M&A / /
Facility
Rotary club / Town Square / University of Utah Health Sciences Center / Farmington University Hospital / Anthony Puccia Emily K. Garner / University Daily Orange / University of Utah / Akron General Hospital / Laboratory Assessment / University of California-San Francisco / Town Hall / Western Baptist Hospital / /
IndustryTerm
medical insurance / online work / insurance premiums / online presence / local media / Online CME Video Acute Porphyrias / insurance / established testing protocol / healthcare professionals / online portal / print media / insurance coverage / /
MedicalCondition
hereditary coproporphyria / acute intermittent porphyria / congenital erythropoietic porphyria / paralysis / acute porphyria / diabetes / muscle pain / diseases / infection / produce porphyria / nerve pain / specific porphyria / noted porphyria / headaches / headache / nausea / heart disease / porphyrias / disease / U.S. Because the acute porphyrias / pain / extremely painful illness / NO porphyria / anemia / stomach pain / pain in my muscles / study porphyria / erythropoietic protoporphyria / Gunther’s Disease / MS / constipation / porphyria / rare disease / severe constipation / Acute Porphyrias / suspect porphyria / /
MedicalTreatment
blood transfusions / /
OperatingSystem
Dos / /
Organization
APF / Akron General Hospital / University of Utah / FDA / University of California-San Francisco / Mount Sinai Porphyria Lab / American Porphyria Foundation Scientific Advisory Board / UTMB-Galveston Porphyria Lab / Acute Porphyrias HealthWell Foundation / Women’s Resource Center / American Porphyria Foundation / American Association for Clinical Chemistry / Utah Health Sciences Center / APF Scientific Advisory Board / Farmington University Hospital / Syracuse University / Western Baptist Hospital on the Evaluation and Management of the Porphyrias / /
Person
Deana K. Muto / Phyllis Todd / Wesley J. Brazas Yvette Strange / Kushner / Carol Mueller / Brendan McGuire / Carissa Nunley Porphyria / Edward Marshall Dolores Brazas / Desnick / Lee Ann Cook / Karl Anderson / Patricia J. Green / John Phillips / Ryan Caballes / Bill Cassano / Ralph Gray Sharon / Denise Byrd / Jack Finnegan / Herbert Bonkovsky / Cason / Rachel / Sandy Kautzman / Lois Marshall / Lynne Murray-Gray / Dan Stranich / Joyce Stranich / Manisha Balwani / Shedlofsky / Thomas H. Aldrich / Lee Ann / Porphyria Awareness Week / Dustin Drapkin David / Linda Turner / Craig Jacklin / Montgomery Bissell / Donna Pagano / Theron Turner / Jessica Melton / Lee Ann Kennedy Sophie Marshall / Sabrina Gray / Wendi Koch Patricia / Karen Eubanks / Eileen Durand / Lois Gragnola / Louise H. Davis / Amy Chapman / Susan Brazas / Don Schildgen / Donald Tschudy / Matt Koch Patricia / Elizabeth L. Frank / Mai Horn / Glenn H. Crocker / Philippe Wolgen / Sharon I. Koch / Carly / Craig Leppert / Ken Stanczak / William Morton / Thomas Dechara / Nicole / Melvin Jeter / Nancy L. Nelson / Marilyn Davis / John Kriha / Gene Bennett / Dave Downey Kathleen Toelkes / Mary Simmons / Thomas Tam / Jon Kautzman / Lyn Odenwald / Sandra Horn Thomas / Sandra Hill / Lisa Barbour / Monica Firchow / Ann Arends / Jennifer P. Schmahl / Fred Clarke / Bruce Wang / Lillian Kehus / Robert / Bill Fiori / Thelma Rhoads / Gary Horn / Pat Fiori / Tracy / M. Laura Parnas / Dana Doheny / / /
Position
psychiatrist / boxer / physician education / physician / CEO / year-round fundraiser / board member / scientist / underwriter / Physician Information Kit / mayor / TV chef / Genetic Counselor and Research Coordinator / treating physician / VP / nutritionist / director / /
June, 2010 Porphyria Awareness Week 2010: It’s All About Our Members! APF members did a dynamite job this year engaging local and national media, raising funds, and getting porphyria awareness into hospitals and medic