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41	1st Quarter, 2008 National Porphyria Awareness Week March 29-April 5, 2008 YOU have the opportunity to enhance awareness of the porphyrias and to educate medical professionals in YOUR area. The APF will assist YOU and s Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:32:40 Acute intermittent porphyria Erythropoietic protoporphyria Heme arginate Hereditary coproporphyria Porphyrias Health Medicine
42	3rd Quarter, 2007 Exciting New Research Project: Dr. Herbert Bonkovsky Life requires energy. Except for mature red blood cells, all cells in the body have organelles called “mitochondria”, which are the “energy pl Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:32:38 Medicine Porphyria Acute intermittent porphyria Variegate porphyria Hereditary coproporphyria Erythropoietic protoporphyria Erythropoietic porphyria Peter Tishler Porphyrin Porphyrias Health Chemistry
43	4th Quarter, 2008 Merry Christmas and Happy Holidays We Pray God’s Blessings for a Happy and Healthy New Year. Together we have made great strides in diagnosis and treatment of the porphyrias. We look forward to even Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:32:35 Acute intermittent porphyria Erythropoietic protoporphyria Porphyrias Health Medicine
44	3rd Quarter, 2012 Dr. Eric Gou Protect the Future’s Newest Doctor The Protect the Future (PTF) program is one of the most important programs the APF. To explain, the present porphyria experts have been the major sourc Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:31:53 Medicine Erythropoietic protoporphyria Variegate porphyria Hereditary coproporphyria Heme arginate Afamelanotide Hemin Hydroxychloroquine Rare Diseases Clinical Research Network Porphyrias Chemistry Health
45	3rd Quarter, 2008 A Gift of Friendship and Education Over the past year, we received a number of requests from physicians around South America asking us to facilitate educational meetings about porphyria diagnosis, trea Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:32:41 Porphyria Acute intermittent porphyria Erythropoietic protoporphyria Variegate porphyria Hereditary coproporphyria House Peter Tishler Porphyrias Health Medicine
46	March, 2010 Porphyria Research Is Starting Now… And You Can Help! Left to right, Dr. Lawrence Liu, Dr. Robert Desnick, Dr. Joseph Bloomer, Dr. John Phillips, Dr. Montgomery Bissell, Dr. Manisha Balwani, Dr. Karl Ander Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:32:45 Acute intermittent porphyria Erythropoietic protoporphyria Erythropoietic porphyria Peter Tishler Porphyrias Health Medicine
47	2nd Quarter, [removed]President’s Award CONGRATULATIONS!!! We are proud to announce that APF member, Dave McRae, has been presented with the APF 2007 President’s Award. Dave and his wife, Laurie, are Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:32:39 Acute intermittent porphyria Erythropoietic protoporphyria Variegate porphyria Peter Tishler Genetic testing Porphyrias Health Medicine
48	4th Quarter, 2012 Merry Christmas, Happy Hanukah, Happy New Year May God Bless You With His Peace, Happiness, Mercy, Joy and Good Health in the New Year. We, too, have been blessed by knowing so many of you personally a Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:32:15 Anatomy Porphyria Acute intermittent porphyria Erythropoietic protoporphyria Robert J. Desnick Systemic lupus erythematosus Peter Tishler Health Porphyrias Medicine
49	Research: The Key To Your Cure! The Porphyria Research Consortium has won funding from the government to perform research, which it is on-going NOW. However, the researchers (shown below) need far more volunteers to con Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:32:22 Medicine Erythropoietic protoporphyria Acute intermittent porphyria Afamelanotide Peter Tishler Porphyrin Porphyrias Chemistry Health
50	September, 2010 Erythropoietic Protoporphyria (EPP) Clinical Trials — 83 Research Volunteers APF members throughout the country have volunteered as research patients for the EPP clinical trials with afamelanaotide, no Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:34:00 Rare diseases Porphyria Acute intermittent porphyria Erythropoietic protoporphyria Tetrapyrroles Porphyrin Sulfonamide Rare Diseases Clinical Research Network Afamelanotide Chemistry Porphyrias Health

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