Primary / AGSA / GlaxoSmithKline / Telstra / SPS Australia / ABC news / AUSTRALASIA INC. / Secondary Care Departments / /
Continent
Europe / /
Country
Bahrain / Australia / United Kingdom / China / United Arab Emirates / New Zealand / United States / /
Currency
USD / EUR / pence / / /
Event
Business Partnership / /
Facility
Seef Mall / Al Jawhara Center/Arabian Gulf University / hospital I / Arab Gulf University / Peking University First Hospital / conference center KKL / Sydney University / St Vincent's Hospital / /
Holiday
Easter / /
IndustryTerm
genetic sequencing technologies / therapies for rare diseases / family assistance law / diagnostic tools / travel time / chemicals / telephone service / home internet / data processing operations / gene sequencing technologies / electricity / therapies for patients and understanding better the diseases / ambulance services / home internet service / healthcare settings / Social work services / media coverage / ever-growing network / /
MedicalCondition
rare diseases / arthritis / Isaacs‘ Syndrome / stiff muscle ataxia cramps / Proteus syndrome / Most rare diseases / deep depression / disorder / illness / very severe upper body spasms / Z OF GENETIC CONDITIONS PROTEUS SYNDROME / rare kidney disease / Pristanic Acid Disorder Isaacs Syndrome Deletion 10q / paralysis / tumors / Beckwith Wiedemann Syndrome / Hereditary Hemorrhagic Telangiectasia / rare kidney diseases / genetic disorder / arm paralysis / seizure / alkaptonuria / Rare Disorders / diseases / Proteus syndrome results / intermittent paralysis / heart disease / very deep depression / Porphyrias / rare disorder / metabolic and immunological disorders / severe tremors / Stiff Person syndrome / Genea CONTENTS Contact Corner Personal Story Issac’s syndrome / acute liver failure / hereditary diseases / chronic and severe diseases / disease / very severe leg spasms / rare disease / spasms / cardiovascular disease / Proteus syndrome experience overgrowth / biggest collective rare diseases / rare and unknown diseases / syndrome / Genetic Disorders / /
MedicalTreatment
hydrotherapy / Physiotherapy / /
Organization
Senate Committee / AUSTRALASIA INC / World Health Organization / Sydney University / Peking University First Hospital / Australian Government / Al Jawhara Center/Arabian Gulf University / REGIONAL NETWORKING ALLIANCE / European Organization of Rare Diseases / Medicare / Al Jawhara Center for Molecular Medicine / Arab Gulf University / International Congress / Centrepay Third Party Organisation / European Commission / European Union / IDEAS Expo Newcastle Entertainment Centre / Ministry of Health / National Institute of Health / Human Genetic Advisory Committee / BEEHAC / Organizing Committee / BEEHAC and AGSA / Congress / HHT Foundation / Steve Waugh Foundation / Association of Genetic Support of Australasia / St Vincent's Hospital / Regional Networking Alliances mission / /
plan manager / President / pastoral care worker / Administration Officer / vice director / Regional Coordinator / executive / Complex Assessment Officer / psychologist / TV controller / walker / Minister of Health / Neurologist / Genetic Counsellor / Professor of Neurology / Projects Manager / Hunter / Commissioner for Research / chair / Manager to replaced Jennifer / Financial Information Officer / /
ASSOCIATION OF GENETIC SUPPORT OF AUSTRALASIA INC. NEWSLETTER Making the right connections since 1988 MARCH 2013 ISSUE 99