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City Dublin / / Company Patron / / Country United States / Ireland / / Currency pence / / Facility Temple Street / / IndustryTerm specialist services / internet searches / Primary Care / disability services / healthcare / internet usage / food / / MedicalCondition Rare Diseases / rare disease / relevant rare disorder / extremely rare disorders / 3p syndrome / seizure / rare disorders / breast cancer / genetic and rare disorders / syndrome / / MedicalTreatment tube feeding / speech therapy / counselling / oxygen therapy / / Organization Opening Statement Lorraine Dempsey-Chairperson Representing Special Needs Parents Association / National Council for Special Education / Department of Education / Oireachtas Committee on Health & Children Rare Disease Day / Jill Foundation / / Person Lorraine Dempsey-Chairperson Representing / / Position advocate / genetic councillor / representative / Consultant / school nurse / Occupational Therapist / Neurologist / Genetic Counsellor / / Technology GPS / / SocialTag 
Presentation to the Joint Oireachtas Committee on Health & Children Rare Disease Day 28th February 2014 Opening Statement Lorraine Dempsey-Chairperson Representing Special Needs Parents Association (SNPA) SNPA is a paren