Australia Newsletter BEECHAC INC. / Holly / NSW Health Inc. / Fabry Support Group / Australasia Inc. / Ingrid / The Steve Waugh Foundation / FSGA PAGE 2 7 BEECHAC Inc. / The Fabry Support Group Australia Inc. / /
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Europe / /
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Hungary / Netherlands / Bulgaria / France / Canada / Australia / Portugal / United Kingdom / China / Finland / Denmark / Taiwan / Germany / Romania / Italy / Sweden / New Zealand / Belgium / Russia / Austria / United States / Luxembourg / Ukraine / Spain / Greece / Ireland / / /
Facility
Royal North Shore Hospital / Kids Research Institute / The Children’s Hospital / Hospital Ward Grandparent / Sydney Opera House / Royal Australasian College of Physicians / /
IndustryTerm
educational tool / communication technology / health services / yvonnez@chw.edu.au Web / imogenyang@beechac.org Web / on health services / genetic services / potential solutions / pharmaceutical / social services / dianne@agsa-geneticsupport.org.au Web / peer support services / kbarlow@med.usyd.edu.au Web / /
Australian government / BEECHAC’s mission / Steve’s mission / Kids Research Institute / AGSA Association of Genetic / SMILE Foundation / Eurordis’ Council of National Alliances / National Organization for Rare Disorders / Royal Australasian College of Physicians / Department of Health / Royal North Shore Hospital in Sydney / Australian Paediatric Surveillance Unit / European Organisation for Rare Diseases / Children’s Hospital / Steve Waugh Foundation / Association of Genetic Support of Australasia / Association of Genetic Supports Australasia / and the Sydney Children / Fabry International Network / National Health and Medical Research Council Council / Centre For Genetics Education / International Genetic Alliance / Division of Paediatrics and Child Health / /
Person
Nicole / Daniel Lane Anne Cutler / Basil Sellers / Fact Sheets / Steve Waugh / Yvonne Zurynski / Kristine Barlow-Stewart / Imogen Yang / Megan Fookes / Evie Smith / Elizabeth Elliott / / /
Position
Mayor / businessman / Executive Director / President / General / scientist / AWCH Program Manager / /
World Rare Disease Day 28 February 2011 World Rare Disease Day is a global event held annually on the last day of February. Its main objective is to raise awareness of rare diseases and their impact on not only the kids