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Global Genes Project / Medical ethics / Rare Disease Day / Patient advocacy / Breast cancer awareness / Rare diseases / Health / Medicine / Epidemiology


2012 Global Genes | RARE Project Year In Review
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Document Date: 2015-02-05 16:42:11

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File Size: 1,97 MB

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City

Aliso Viejo / /

Company

Idis Founder / Poniard Pharmaceuticals / /

Country

United States / /

Event

Person Communication and Meetings / /

IndustryTerm

social media channels / pharmaceutical industry / /

MedicalCondition

rare and genetic disease / rare diseases / Cancer / disease / young rare disease patient fighting Shwachman-Diamond Syndrome / rare and genetic diseases / worldwide rare and genetic disease / rare disease / genetic diseases / different rare and genetic diseases / diseases / AIDS / breast cancer / /

Organization

Community Development BOARD / RARE Project / FDA / EveryLife Foundation / RARE Corporate Alliance / RARE Disease / /

Person

Caroline Loewy Peter Pellizzon / Katrina Parker / Carrie Ostrea Ashley Girtman Katie / Lisa James Jen Engleman John Crowley Natalie / Elliot Yamin / Chris Mann / Wondros Founder / Gracie Van Brundt / NICOLE BOICE / John Crowley Natalie Douglas Jesse / Gala Approximately / Amicus Therapeutics / Connor Lisa James Jen / Ashley Girtman Katie Mastro Hugh / Katie Mastro Hugh Hempel Caroline / Hugh Hempel Caroline Loewy Peter / Hope Gala / /

Position

Advocate / CEO / Director / Community Development Manager / Community Development Director / Development / President / Detective / CEO / Amicus / Parent Advocate CEO / Manager / Development Director / Community Development Manager / Director / Marketing Program Manager Program Manager Manager / /

ProgrammingLanguage

Dylan / /

ProvinceOrState

California / /

URL

www.globalgenes.org / /

SocialTag