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Microsoft Word - NPRD_2009[removed]EN.doc
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Document Date: 2009-04-24 03:38:04


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File Size: 270,79 KB

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Company

Wilson / National Health Insurance Fund / /

Country

Bulgaria / /

IndustryTerm

healthcare facility / and functioning screening network / transportation / healthcare system / prevention of rare diseases / treatment of rare diseases / treatment management / health services / diagnostic and therapeutic protocols / healthcare facilities / clinical protocols / /

MedicalCondition

muscle atrophies / rare diseases / PLAN FOR RARE DISEASES / hereditary diseases / hemophilia A / chromosomal diseases / genetic disease / patients wuth rare diseases / chromosomal disease / rare disease / rare genetic diseases / different multigenic diseases / hereditary disease / congenital hyperthyroidism / each proposed disease / phenylketonuria / spinal muscle atrophy / non‐hereditary diseases / /

MedicalTreatment

clinical protocols / counseling / in vitro fertilization / /

Organization

Ministry of Health’s National Consulting Council for Rare Diseases / Ministry of Labour and Social Policy / European Drug Agency / National Center for Health Information / National Consulting Council for Rare Diseases / European Genetic Foundation / European Union / Rare Disease Task Force / Ministry of Health / Information Centre for Rare Diseases and Orphan Drugs / /

Position

Chairman / Minister of Health / physician / /

Technology

diagnostic tests / diagnostic and therapeutic protocols / /

SocialTag