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Microsoft Word - Agenda_RD_meeting_GM_20111025_fin.doc
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Document Date: 2011-10-25 07:19:42


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File Size: 27,88 KB

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Company

WILSON / CHS / Rare Disease Europe / Pilot European Reference Networks / /

Continent

Europe / /

Country

France / United Kingdom / Luxembourg / Ireland / /

Facility

University of Newcastle / JEAN MONNET building / /

IndustryTerm

reference network / /

MedicalCondition

central hypoventilation / rare diseases / Bardet Biedl syndrome / Cystinosis / Retinitis Pigmentosa / rare cancers / Duchenne Muscular Dystrophy / Wolfram syndrome / Rare Pediatric Neurological Diseases / Alstrom syndrome / Intoxication type Metabolic Diseases / /

Organization

IMD / European Medicines Agency / Irish National Alliance / Centre for Neuromuscular Disease / European Union / European Organisation for Rare Diseases / EXECUTIVE AGENCY FOR HEALTH AND CONSUMERS / University of Newcastle / Committee for Orphan Medicinal Products / /

Person

A.DALY / E.GARNE / S.PARKER / J.DALLI / H. TRANG / M. Y.LE CAM / L.GREENE / K. PARKINSON / K.GRAMSCH / K.AIACH / S.AYME / D.TARUSCIO / L.BRIOL / Cystic Fibrosis / /

Position

Directorate General / Principal Advisor / Directorate General / President / Coordinator / Director / Chief Executive / Rare Diseases Chair / Commissioner / Minister of Health / Director General / /

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