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RARE DISEASE DAY JV1 N A T I O N A L P O S T, T H U R S D A Y, F E B R UA R Y 2 8 , [removed]
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Document Date: 2012-02-26 16:47:17


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File Size: 1,54 MB

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City

Montreal / Washington / D.C. / Toronto / Markham / /

Company

BIOTECanada / Canadian Multiple Endocrine Neuroplasia Type 1 Society Inc / /

Continent

Europe / /

Country

France / Canada / United Kingdom / Denmark / Germany / Italy / Belgium / United States / Spain / /

Currency

USD / /

/

Event

Funding / /

Facility

Canadian National Institute / University of British Columbia / Anemia Institute / University of Montreal / Blind’s Ontario Medical Mobile Eye Clinic / University of Toronto / Procrea Clinic / McGill University / /

/

IndustryTerm

nation-wide support network / healthcare delivery / food / treatment of rare diseases / media events / early stage drug products / biotechnology / Web casts / infection-fighting systems / /

MedicalCondition

rare diseases / often lifethreatening disorders / sickle cell anemia / multiple sclerosis / Allied Disorders / illness / little-known disorders / paralysis / cancer / common serious diseases / genetic diseases / diabetes / neurofibromatosis / benign tumors / myelodysplasia / auto-immune disease / rare disorders / diseases / PKU / hereditary conditions / infection / Those diseases / disorders / body’s infection / myelodysplastic syndromes / heart disease / rare disorder / aplastic anemia / Cystic fibrosis / lupus / common diseases / gyrate atrophy / orphan diseases / Elephant Man’s disease / disease / cataracts / Scleroderma / rare disease / once relatively rare disease / Pompe’s disease / mean catching a disease / /

MedicalTreatment

cornea transplants / physiotherapy / counselling / /

Organization

Canadian Association for Tay-Sachs and Allied Diseases / Institute for Research & Education / national biotechnology industry association / Guillain-Barre Syndrome Foundation of Canada Inc. / Life Philanthropic Organization / Life Fund / McGill University / Canadian Neuropathy Association / National Niemann-Pick Disease Foundation / Aplastic Anemia and Myelodysplasia Association of Canada / European Commission / Canadian Association of Pompe / Ontario government / National Office / Canadian Chapter / McGill University in Montreal / Association of Canada / Canadian National Institute for the Blind / Foundation of Canada / Canada Cystic Fibrosis Foundation / Canadian Society for Mucopolysaccharide / Canadian Organization for Rare Disorders / University of Montreal / Society of Alberta / Toronto Chapter / RR0001 Lupus Canada / University of British Columbia / University of Toronto / Scleroderma Society of Canada / /

Person

Susan Keast / Judi Farrell / Jennifer Fitzpatrick / Cathleen Morrison / Don Bell / Stephen Groft / Peter Brenders / Gail Ouellette / CORD AFFILIATE / Grant Dustin / Elephant Man / Durhane Wong-Rieger / Alexandra Pon / Steve Arshinoff / /

/

Position

director of the office / president / chief executive officer / Vancouver Liberal MP / Member of Parliament / counsellor / director of the Master / counsel / chief operating officer / director / advice and informed counsel / leader in research / secretary-treasurer / /

Product

Montreal / /

ProvinceOrState

British Columbia / Ontario / /

Region

southern Ontario / Northern Ontario / /

Technology

human genome / Alpha / biotechnology / /

URL

www.gbsfi.com / www.medicalert.ca / www.nnpdf.ca / www.scleroderma.ca / www.pqmgo.org / www.fabrycanada.com / www.fanconicanada.org / www.canpku.org / www.thalassemia.ca / www.c22c.org / www.aboutface.ca / www.seedoflifepo.org / www.orphan.net / www.anac.ca / www.savebabiescanada.org / www.aamac.ca / www.canadianneuropathyassociation.org / orphan.net / www.familialdysautonomia.org / www.fpwr.ca / www.cysticfibrosis.ca / www.bcfn.bc.ca / www.mpssociety.ca / www.chargesyndrome.ca / www.dystonia-foundation.org / www.anemiainstitute.org / www.mldfoundation.org / www.gbsfi.ca / www.lupuscanada.org / www.mensociety.com / www.lupus.ab.ca / www.cnib.ca / www.catsad.ca / www.alpha1canada.ca / www.wgsg.ca / /

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