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Science / Syndromes / Rare Disease Day / Greek Alliance of Rare Diseases / Health / European Organization for Rare Diseases / Rare diseases


Microsoft PowerPoint - f. HOUYEZ - EURORDIS.pptx
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Document Date: 2014-04-23 10:40:14

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File Size: 842,89 KB

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City

Prague / /

Company

Delphi / /

Country

United Kingdom / France / Denmark / /

IndustryTerm

healthcare professionals / /

MedicalCondition

years Marfan syndrome / years Prader Willi syndrome / years Duchenne Muscular Dystrophy / months Tuberous Sclerosis / Rare Diseases / years Crohn’s disease / disease / patients Cystic Fibrosis / rare disease / years Ehlers Danlos syndrome / /

Organization

EURORDIS / Rare Disease Task Force / /

Person

Deirdre / François Houÿez / /

Position

Director of Health Policy / /

URL

www.eurordis.org / /

SocialTag