multi-stakeholder steering / healthcare field / treatment of rare diseases / Rare Disease Therapy / quality healthcare / healthcare / healthcare systems / orphan medicinal products / /
MedicalCondition
cancers / rare diseases / cancer / rare cancers / severe and rare diseases / rare disease / diseases / /
Organization
Patients’ Organisation / Working Party / Belgian Steering Committee for Rare Diseases / Science and Technology committee / European Union / European Parliament / King Baudouin Foundation / Federal Parliament of Belgium / /
Person
Yolande Avontroodt / Astrid / Jean-Jacques Cassiman / Alastair Kent / Michael Griffith / /
Position
EPPOSI Secretary-General and Chair / author / Chair / member / /