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Rare disease / Rare Disease Day / European Organization for Rare Diseases / Orphan drug / Public health / Disease / Health / Epidemiology / Health economics


Rare Disease Day Welcome Pack
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Document Date: 2013-10-04 04:29:42

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File Size: 1,01 MB

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Jasmine / Jean / Arman / Jonathan / Ester / Content Laura / Jacob / Yuliya / /

Continent

Europe / /

Country

Germany / France / Portugal / United Kingdom / Armenia / Finland / Ukraine / /

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IndustryTerm

treatment for rare disease / healthcare services / care of rare disease / health systems / reference networks / /

MedicalCondition

Rare Diseases / made rare diseases / disease / Friedreich ataxia / rare disease / European Rare Disease / Maroteaux-Lamy syndrome / Sickle Cell Disease / muscular atrophy / infantile Batten disease / Phenylketonuria / very rare diseases / chronically debilitating diseases / /

Organization

European Commission / European Union / European Parliament / /

Person

Anja Helm / /

Technology

http / pdf / /

URL

http /

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