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Rare disease / Orphan drug / Durhane Wong-Rieger / Medicine / Childbirth / Cord blood bank / Health / Canadian Organization for Rare Disorders / Pharmaceuticals policy


For Immediate Release September 24, 2014 CORD Urges Ministers of Health to Adopt Proven Model for Improved Access to Treatments for Rare Disorders Local and international experts agree managed access program is the key t
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Document Date: 2014-09-24 10:18:50


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City

TORONTO / BANFF / /

Continent

Europe / /

Country

United States / Italy / Canada / United Kingdom / Spain / /

Facility

University of Manitoba / /

IndustryTerm

healthcare system / therapies for rare and ultra-rare disorders / workable solution / /

MedicalCondition

rare and ultra-rare disorders / rare diseases / metabolic diseases / disease / rare disease / Rare Disorders A / certain cancers / tuberous sclerosis complex / rare disorders / disorder / infections / tumours / ultra-rare disorder / /

Organization

University of Manitoba / Department of Pediatrics and Child Health / Canadian Organization for Rare Disorders / /

Person

Cathy Evanochko / CORD CORD / Cheryl Rockman-Greenberg / /

Position

leader / professor / president / advocate for health policy / member of board of directors / /

ProvinceOrState

Alberta / Manitoba / /

SocialTag