White Plains / Mailstop E86 Atlanta / Philadelphia / Pittsburgh / Portland / Bethesda / Greensboro / Durham / Woodbridge / Arlington / Denver / Rochester / Washington / DC / Boulevard Philadelphia / Building Albany / Miami / San Ramon / Chicago / /
Company
M.D. / M.P.H. / NEWBORN SCREENING SYSTEMS USING PARTNERSHIPS / Corning / Medicine San Ramon Valley Primary Care Medical Group / Luminex / M.S. Health Resources / Acyl / Oregon State Public Health Laboratory / GA 30333 Denise Dougherty / B. A Public-Private Partnership / M.P.H. Pediatric / PA 15213 Page 2 Liaison Members Present / M.A. / Health / /
Country
Columbia / /
Facility
National Medical Center / University of Pittsburgh Medical Center / Memorial Hospital Division / Children’s Hospital of Philadelphia / Pediatrics University of Minnesota Dr. Berry / American College of Obstetricians / Corning Tower / HHP Building / Human Performance University of North Carolina / University of Massachusetts Medical School / Gynecology University of South Carolina School / Bolling AFB / Ph.D. University / Child Health Bureau Parklawn Building / Medicine University / Civic Center / Hospital of Philadelphia / American College of Medical Genetics Michael S. Watson / Jones Building / Oregon State Public Health Laboratory / University of Pittsburgh / Medical Genetics Children's Hospital of Pittsburgh / Children's Hospital of Pittsburgh / Laboratory Standards / Laboratory Medicine / Pathology Mayo Clinic College of Medicine / Conference Center / Children’s Plaza / Medicine University of Miami Agenda / Duke University Medical Center / Marriot Bethesda North Hotel / / /
IndustryTerm
Web-based registry / interoperable electronic health information systems / medium chain / Web-based IBEM-IS / diagnostic and medical management protocols / treatment of other diseases / programs/systems / followup services / data management / /
MedicalCondition
MCAD deficiency / metabolic disorders / childhood cancer / diseases / inborn errors of metabolism / deficiency / such disorders / disorders / fatty acid oxidation disorders / maple syrup urine diseases / single disorder / MS / Pompe disease / severe combined immunodeficiency / /
Organization
Obstetrics and Gynecology University / New York State Department / Laboratory Medicine and Pathology Mayo Clinic College of Medicine / University of South Carolina / M.P.H. Secretary's Advisory Committee on Genetics / State Epidemiologist Colorado Department of Public Health and Environment / FACMG Executive Director American College of Medical Genetics / Advisory Committee on Heritable Disorders and Genetic Diseases / Organization Representatives Present American Academy / Medical Genetics Children's Hospital of Pittsburgh of UPMC / Duke University / University of Pittsburgh / School of Medicine / Birth Defects and Developmental Disabilities National Center on Birth Defects and Developmental Disabilities / Genetic Alliance / SACHGS Task Force on Gene Patents and Licensing Practices / Academic Affairs and Intramural Practice Department of Laboratory Medicine / Child Neurology Society / Advisory Committee on Federal / Society for Inherited Metabolic Disorders Children / Society Professor / Public Health Research and Practice Department of Public Health Education School of Health / Children’s Hospital of Philadelphia / Pittsburgh Medical Center / Agency for Healthcare Research and Quality Senior / Division of Genetics / HRSA’s Maternal and Child Health Bureau / American College of Medical Genetics Michael S. Watson / University of North Carolina at Greensboro / American College of Obstetricians / Food and Drug Administration / Laboratory Standards & Procedures Subcommittee / Followup & Treatment Subcommittee / Children's Hospital of Pittsburgh / Defects Foundation / Advisory Committee’s Laboratory Standards & Procedures Subcommittee / Department of Pediatrics / Association of State / Colorado Department of Public Health and Environment / University of Miami / Education & Training Subcommittee / Metabolism Team Division / Medicine University / Inherited Metabolic Disorders Children’s Memorial Hospital Division of Genetics and Metabolism / Society for Inherited Metabolic Disorders Barbara K. Burton / Centers for Disease Control and Prevention / National Medical Center / Maternal and Child Health Bureau / Graduate School / Dimes’ office of Government Affairs / Chief Executive Officer Genetic Alliance / Advisory Committee on Genetics / Services Administration / Department of Defense / University of Massachusetts Medical School / ADVISORY COMMITTEE / Department of Pediatrics University of Minnesota / Duke University Medical Center / National Institute of Child Health and Human Development / /
Person
Marie Mann / Christopher Kus / William Slimak / Anne Comeau / Emil Wigode / Nedrow (Ned) Calonge / Pike Bethesda / Rebecca H. Buckley / James Perrin / Barbara K. Burton / Bennett Lavenstein / Dougherty / Stephen Downs / Rodney Howell / Bruce Nedrow (Ned) / Rockville / Alan R. Fleischman / Tracy L. Trotter / Timothy A Geleske / Anthony R. Gregg / Inborn Errors / Joseph Telfair / Nancy Green / Pediatric / Gerard Vockley / Comprehensive Sickle / Susan Berry / Michael Skeels / Outcomes Workgroup / Present Duane Alexander / James Evans / Roger Eaton / Kwaku Ohene-Frempong / Sharon F. Terry / / /
Position
Secretary of Health / Director / Division / Advisor / President / director of Federal affairs / Secretary / Chief / Director March / Professor of Pediatrics / Professor / DC The Secretary / Executive Secretary / Administrator / Maternal Fetal Medicine Medical Director of Genetics Department / Professor of Laboratory Medicine T. Denny Sanford Professor of Pediatrics Vice-Chair / HHS Secretary / Chair / Secretary / Director Division of Family Health / Chief Consultant / Public Health Chief / Lt. Col. / Chief Medical Officer / Professor and Director / Senior Vice President and Medical Director / Director / chair / Medical Officer / Professor of Human Genetics / Senior Partner / M.D. National Institutes of Director / /
ProgrammingLanguage
DC / /
ProvinceOrState
Nebraska / Ohio / Minnesota / Virginia / Indiana / New York / Michigan / South Carolina / California / Colorado / Kentucky / Wisconsin / Maryland / Illinois / Oregon / Pennsylvania / Florida / North Carolina / Massachusetts / /
PublishedMedium
the Nomination Review / Public Law / /
Region
New England / /
Technology
diagnostic and medical management protocols / relational database / /
Kerry’s/Active Jobs/HSR-DC/HSR-2005/THIRD HRSA MEETING--SHELL-JAN