Turkey / United States / Australia / Spain / Ireland / /
Currency
USD / / /
Event
Person Communication and Meetings / Employment Change / /
Facility
Crowne Plaza / Natural History Clinic / /
IndustryTerm
frantic search / treatment for rare disease / high travel costs / /
Organization
FEIN / ISMRD’s mission / International Advocates for Glycoprotein Storage Diseases / Charles Sturt University / /
Person
Yasar Suleymanbey / Faith / Jesse Sibert / Caryl / Melissa Rust / Jenny Noble / Susan Kester / Glen Nicholas / Jade / Carolyn Paisley-Dew / John Davids / Catriona Reidy / John Reidy / Melisa Rust / David Vidal / Maddie / Andrea Ballabio / John Forman / Ahsley Pauls / Lucas / Jackie James / Julia Sutton / Pam Tobey / Liam / Tegan / Paul Murphy / Christian / Charles / Sandra D'Azzo / Liz Sibert / Tim Wood / Marc Patterson / Mark Stark / Steet Judith Blanz Morning Break / Peter Lobel / Mary / Andrea Gates / Grace / Julie P Dennison / Nila Coley / Chase / Troy Lund Pathways / Sara Cathey / Cameron / / /
Position
Board Member / President / TBA Chair / alpha mannosidosis Chair / General / SALESMAN / Chair Scientific Program / vice-President for Research / child Chair / Family Program Chair / Keynote speaker / board member and vice-President for many years / Chair / Zebera fish model / Joint Scientific/Family Session Chair / forward / /