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Epidemiology / Newborn screening / Pediatrics / Tay–Sachs disease / Screening / Sickle-cell disease / March of Dimes / Association of Public Health Laboratories / Maternal and Child Health Bureau / Health / Medicine / Rare diseases


Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children - Summary of the 21st Meeting - May 13-14, 2010, Washington, DC
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Document Date: 2014-12-04 01:13:20


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File Size: 1,84 MB

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City

San Francisco / Albany / Mailstop E86 Atlanta / Pittsburgh / Durham / Woodbridge / Arlington / Denver / Rochester / Seattle / Washington / DC / Arlington Heights / Miami / San Ramon / San Diego / Chicago / Washington / DC / Hillsboro / /

Company

M.D. / Carrier Screening Sara Copeland / Health Research Inc. / M.D. Health Resources / Medicine San Ramon Valley Primary Care Medical Group / M.S. Health Resources / H. Director Oregon State Public Health Laboratory / GA 30333 Denise Dougherty / M.A. / M.P.H. / MD 20857 / /

Event

Labor Issues / /

Facility

National Medical Center / Hematology The Children's Hospital of Philadelphia University of Pennsylvania School / Memorial Hospital Christopher Kus / American College of Obstetricians / DC Dupont Circle Hotel / Pediatrics Naval Medical Center / Ph.D. University / University of Pennsylvania School / Child Health Bureau Parklawn Building / Family Medicine University of Washington / Medicine University / Civic Center / Medicine University of Miami / American College of Medical Genetics Michael S. Watson / Jones Building / Medical Genetics Children's Hospital of Pittsburgh / Laboratory Standards / Laboratory Medicine / Pathology Mayo Clinic College of Medicine / Hematology The Children's Hospital / York State Department of Health Corning Tower / Children’s Plaza / Philadelphia University of Pennsylvania School / /

IndustryTerm

media attention / active / joint working / carrier screenings / carrier status policy / carrier status / carrier frequency / carrier test / /

MedicalCondition

disorder / Critical Cyanotic Congenital Heart Disease / diseases / Lysosomal Storage Diseases / sickle-cell disease / Krabbe disease / Tay Sachs disease / Single Gene Disorders / disease / autosomal recessive disorders / SCID / sickle cell trait / /

MedicalTreatment

counseling / /

Organization

Pediatrics Leonard M. Miller School / University of Pennsylvania School of Medicine / New York State Department / University of Washington / Laboratory Medicine and Pathology Mayo Clinic College of Medicine / University of Pennsylvania School of Medicine Director-Emeritus / U.S. Air Force / Acting Director Eunice Kennedy Shriver National Institute of Child Health and Human Development / Medical Director Association of Public Health / Daniel Burnham Court / Birth Defects and Developmental Disabilities National Center on Birth Defects / Food and Drug Administration Scientific Reviewer/Biologist Division of Chemistry / Proposed Task Force on Carrier Screening / State Epidemiologist Colorado Department of Public Health and Environment / FACMG Executive Director American College of Medical Genetics / Inherited Metabolic Disorders Officials Children’s Memorial Hospital / Sickle Cell Center / Delaware Public Health Laboratory Society for Inherited Metabolic Disorders / National Athletic Trainers’ Association / Organization Representatives Present American Academy / Toxicology Devices Office / Child Health Bureau / Duke University / University of Pittsburgh / Genetic Alliance / Academic Affairs and Intramural Practice Department of Laboratory Medicine / Advisory Committee on Heritable Disorders / Child Neurology Society / State & Territorial Health Society for Inherited Metabolic Disorders Officials Children / Subcommittee on Laboratory Standards and Procedures / Children's Hospital / Agency for Healthcare Research and Quality Senior / American Academy of Pediatrics Timothy A. Geleske / Carrier Screening Task Force / National Institute of Health / FAAFP Department / American College of Medical Genetics Michael S. Watson / American College of Obstetricians / National Collegiate Athletic Association / Sickle Cell Disease Association of America / Division of Family Health / Department of Pediatrics / Association of State / Council on Bioethics / University of Miami / Department of Pediatrics Naval Medical Center / Subcommittee on Education and Training / Medicine University / Centers for Disease Control and Prevention / National Medical Center / Graduate School / Chief Executive Officer Genetic Alliance / Sickle Cell Center Division / Services Administration / Civic Center Philadelphia / Department of Defense / Advisory Committee / /

Person

Sharon F. Terry / Michele Lloyd-Puryear / Eunice Kennedy Shriver / Workgroup Kwaku Ohene-Frempong / R. Rodney Howell / Joseph Bocchini / Alan Guttmacher / Pike Bethesda / Lanetta Jordan / Rebecca H. Buckley / Daniel Burnham / Jeff Botkin / Barbara K. Burton / Bennett Lavenstein / Rodney Howell / Rockville / Allen Hogge / Alan R. Fleischman / Present Coleen Boyle / NSPS YG / Gynecologists Thomas Musci / Sara Copeland / Frederick M. Chen / Branch Maternal / Piero Rinaldo / Gerard Vockley / Coleen Boyle / Michael Skeels / Jane Getchell / Ned Calonge / Tom Musci / Kwaku Ohene-Frempong / Christopher Kus / /

Position

Director / Division / Advisor / President / General / Secretary / Chief / Professor of Pediatrics / Professor / Executive Secretary / Administrator / athlete / representative / Chair / Secretary / Public Health Chief / Associate Medical Director Division of Genetics and Metabolism / Chief Medical Officer / Senior Vice President / Children The Secretary / Chair / Professor of Laboratory Medicine T. Denny Sanford Professor / Senior Partner / /

ProgrammingLanguage

DC / /

ProvinceOrState

Minnesota / Virginia / New York / Washington / California / Colorado / Maryland / Illinois / Pennsylvania / Delaware / Florida / North Carolina / Oregon / /

PublishedMedium

Public Law / /

SportsEvent

NCAA / the NCAA / /

SportsLeague

Division I / National Collegiate Athletic Association / /

SocialTag