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Medical ethics / Research ethics / Clinical research / Biological databases / Biobanks / Biobank / Biological specimen / Right to withdraw / Informed consent / Ethics / Science / Applied ethics


ARTICLE Active choice but not too active: Public perspectives on biobank consent models Christian M. Simon, PhD1,2, Jamie L’Heureux, MS3, Jeffrey C. Murray, MD3, Patricia Winokur, MD2, George Weiner, MD2,4, Elizabeth
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Document Date: 2011-05-26 15:33:33


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City

Geneva / Garrison / Paris / Iowa City / /

Company

Business Insights Ltd. / UIHC Biobank / Genesys Sampling Systems / Wilson / Pearson / New York Times / McCall / Biobank / /

Continent

Europe / /

Country

United States / /

Currency

USD / /

/

Facility

Carver College of Medicine / University of Iowa / University of Northern Iowa / University of Iowa Hospitals / University of Iowa IRB / University of Northern / College of Public Health / University of Iowa Carver College / UI Carver College of Medicine / Vanderbilt University / College of Liberal Arts / University of Northern Iowa’s Center / /

IndustryTerm

insurance discrimination / formal healthcare service / focus / telephone surveys / telephone survey / telephone using random digit dialing / genetic services / /

MedicalCondition

JE / mental illness / breast cancer / specific diseases / cancer / disease / Recontact fatigue / breast cancer facing surgery / diabetes / diseases / infection / /

MedicalTreatment

surgery / /

Organization

U.S. Department of Health and Human Services / University of Iowa IRB / University of Northern Iowa’s Center of Social and Behavioral Research / World Health Organization / University of Iowa Hospitals and Clinics / Carver College of Medicine / Office for Human Research Protections / College of Liberal Arts and Sciences / University of Northern Iowa / College of Public Health / University of Iowa Carver College of Medicine / University of Northern / the University of Iowa / office of Human Research Protections / 4Holden Comprehensive Cancer Center / Vanderbilt University / Center for Social and Behavioral Research / International Bioethics Committee / Texas Department of State / UI Carver College of Medicine / Institute for Clinical and Translational Sciences / United Nations Educational Scientific and Cultural Organization / Hastings Center / Human Genetics Commission / /

Person

George Weiner / Christian M. Simon / Patricia Winokur / Laura Shinkunas / Elizabeth Newbury / Bridget Zimmerman / Jeffrey C. Murray / /

Position

investigator / editor / Vice President for Medical Affairs / researcher / IRB Advisor / moderator and research assistant / representative of public perceptions / model for genomic biobanks / /

ProgrammingLanguage

HTML / /

ProvinceOrState

Wisconsin / Illinois / Iowa / /

PublishedMedium

New York Times / Lippincott Williams & Wilkins / /

Region

Northern Iowa / US Midwest / /

Technology

genomics / research protocols / cloning / HTML / PDF / drug discovery / http / /

URL

www.hhs.gov/ohrp/policy/cdebiol.html / http /

SocialTag