Back to Results
First PageMeta Content
Rare diseases / Leukodystrophy


United Leukodystrophy Foundation Family Conference July 15-18, 2015 Embassy Suites Hotel, 555 South 10th Street, Omaha, NE Wednesday, July 15th
Add to Reading List

Document Date: 2015-05-21 15:21:26

Open Document

File Size: 248,50 KB

Share Result on Facebook

City

Omaha / /

Company

M.D. / Keith VanHaren / ULF / /

Facility

Embassy Suites Hotel / /

IndustryTerm

transportation / /

MedicalCondition

PM Potassium Channelopathy-like Defect Underlies early-stage Cerebrovascular Dysfunction / /

MedicalTreatment

acupuncture / /

MusicGroup

Ph.D. / /

Organization

Rutgers New Jersey Medical School / AM Patient Learning Academy of ALD Connect / PM Memorial Service / National Organization for Rare Disorders / AM Introductions ULF Board of Directors Alan & Michelle Fingeroot Doug / Medical & Scientific Advisory Board / Aidan Jack Seeger Foundation / /

Person

Families John Fink / Leukodystrophies Maria Escolar / Lena Bezman / Clinic Deborah Renaud / Aidan Jack / Hong Brereton / Marjo van der Knaap / Robert Rauner / David Edwin / Paul Watkins / Yvonne Rauner John Wolf / Elisa Seeger / Florian Eichler / Kathy Zackowski / Pamela Gavin / Deborah Renaud / Testing Steven Steinberg / Michelle Fingeroot Doug / William Rizzo / Ann Moser / Transgenomic David Ralph / Alan Fingeroot / Rita Hedrick-Helmick Robert / John Fink / Kendrick Goss / Charles Peters / Michelle Fingeroot / Joshua Bonkowsky / Joyce Changle Ron / Leukodystrophy Bio / Fabrice Dabertrand / Doug Bermel / Ian Duncan / Marla Chapleau Rita / Sakkubai Naidu / Carriers Lena Bezman / Swati Sathe / Therapies Adeline Vanderver / Andrea DeBarber / Diane Bermel Joe / Keith VanHaren / /

Position

Advocate / Director / Joshua Bonkowsky / Chief Operating Officer / President / Treasurer / Chair / Director of Neurology Marketing Breakout Sessions / Associate Professor / Director / /

RadioStation

Wolf 8 / /

SocialTag