TREAT-NMD

Results: 24



#Item
11Pharmaceutical industry / Muscular dystrophy / Clinical trial / Design of experiments / Pharmacology / Disease registry / Spinal muscular atrophy / TREAT-NMD / Duchenne muscular dystrophy / Medicine / Health / Clinical research

Australian NMD Registry Consent Form Version[removed]

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Source URL: nmdregistry.com.au

Language: English - Date: 2015-02-25 01:48:04
12Genetic genealogy / Limb-girdle muscular dystrophy / Myotonic dystrophy / TREAT-NMD / Duchenne muscular dystrophy / Nemaline myopathy / Centronuclear myopathy / Myotonia / Facioscapulohumeral muscular dystrophy / Health / Muscular dystrophy / Medicine

8-9 MARCHANN Workshop REPORT Executive

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Source URL: www.ann.org.au

Language: English - Date: 2012-05-07 00:31:02
13TREAT-NMD / Clinical research / Pharmaceutical industry / Spinal muscular atrophy / Disease registry / Clinical trial / Duchenne muscular dystrophy / NMD / Council of European National Top Level Domain Registries / Medicine / Health / Medical research

CHARTER_TREAT-NMD_Global_Database_Approved

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Source URL: www.treat-nmd.eu

Language: English - Date: 2011-01-12 04:58:12
14Medical research / TREAT-NMD / Spinal muscular atrophy / Duchenne muscular dystrophy / NMD / Disease registry / Neuromuscular Disorders / Medicine / Health / Muscular dystrophy

Charter for the NMD Registry Version[removed]

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Source URL: nmdregistry.com.au

Language: English - Date: 2015-02-03 22:49:05
15Health economics / Health policy / Medical research / Rare disease / Public health / European Organization for Rare Diseases / Czech Republic / Directorate-General for Health and Consumers / TREAT-NMD / Health / Medicine / Epidemiology

LOGO CE_VERTICAL_NEGATIVE_ALL_QUADRI_11_2013_

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Source URL: ec.europa.eu

Language: English - Date: 2014-12-08 11:13:48
16Pediatrics / Rare diseases / Muscular dystrophy / Duchenne muscular dystrophy / TREAT-NMD / Cystic fibrosis / European Union / Newborn screening / Health / Medicine / Epidemiology

LOGO CE_VERTICAL_POSITIVE_ALL_QUADRI_11_2013

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Source URL: ec.europa.eu

Language: English - Date: 2014-12-02 03:54:06
17Science / Drug discovery / Rare disease / European Organization for Rare Diseases / TREAT-NMD / Cellectis / Clinical trial / Biomarker / Trophos / Medicine / Health / Epidemiology

PATIENT ORGANISATIONS - serve as disease-specific experts - reduce bottlenecks/barriers for entry into rare disease area - a source of innovation for frequent disorders • Provide access to knowledge, expertise , and pa

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Source URL: www.rare-diseases.eu

Language: English - Date: 2014-05-20 06:02:46
18Research / Muscular dystrophy / Pharmaceutical industry / Motor neurone disease / Rare diseases / TREAT-NMD / Duchenne muscular dystrophy / Clinical trial / Amyotrophic lateral sclerosis / Health / Medicine / Clinical research

_A01: Financing Network Durability

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Source URL: www.rare-diseases.eu

Language: English - Date: 2014-05-02 12:07:18
19TREAT-NMD / Science / EuroBioBank / Rare disease / Biobank / Health care / Medicine / Health / Medical research

Assessing the potential of a European Reference Network for Neuromuscular Diseases: outcomes of an ENMC workshop Teresinha Evangelista a a,

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Source URL: www.rare-diseases.eu

Language: English - Date: 2014-05-02 11:27:26
20Muscular dystrophy / Facioscapulohumeral muscular dystrophy / Motor neurone disease / Disease registry / Amyotrophic lateral sclerosis / TREAT-NMD / Health / Medicine / Rare diseases

UK FSHD Patient Registry www.fshd-registry.org/uk Libby Wooda, Teresinha Evangelista , Marita Pohlschmidt b, Andrew Graham b, Stuart Watt b, Suzanne Watt b, Cheryl Longman c, Mark Roberts d ,David Hilton-Jones e, Peter L

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Source URL: www.rare-diseases.eu

Language: English - Date: 2014-05-13 08:53:33
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