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Rare diseases / Duchenne muscular dystrophy / Porphyria / Cystic fibrosis / Physical therapy / TREAT-NMD / Genetic Alliance UK / Medicine / Health / Muscular dystrophy


Microsoft Word - Project_fiches_for_press_pack_v.4.doc
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Document Date: 2011-10-25 07:24:40

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City

Transfuzjologii / Alternating Hemiplegia / Rotterdam / Milano / Lyon / TIMISOARA / Köln / Universitätsklinikum Tübingen / Emiplegia Alternante Onlus / Maastricht / Barcelona / Slovenia Universitätsklinikum Heidelberg / Cardiff / Univerzita Karlova / gemeinnnütziger Verein / Warszawski Uniwersytet Medyczny / Tyne / /

Company

Ova Production Inc / Wilson / Norway Orphan Europe SARL / Social Care Trust / HP / /

Continent

Europe / /

Country

Netherlands / United Kingdom / Lithuania / Denmark / Germany / Romania / Italy / Sweden / Poland / Belgium / Austria / Spain / Czech Republic / /

Currency

EUR / /

/

Facility

Spain University Medical Centre / Italy KING'S COLLEGE HOSPITAL / Netherlands Karolinska University Hospital / National Institute of Environmental Health / University of Bologna / Italy Haukeland University Hospital / University of Newcastle / Vilnius University / Charles University / University College London / Children Hospital / Poznan University of Medical Sciences / Italy Leiden University Medical Center / Hospital Clínic / University of Lyon / /

IndustryTerm

inclusive reference network / specialist diagnostic services / reference network / operational network / healthcare / molecular quality network / /

MedicalCondition

autosomal recessive genetic disorder / rare diseases / specialist porphyria / Tuberous Sclerosis / diarrhea / Hypothalamic hamartoma / Rasmussen's encephalitis / liver disease / infertility / metabolic diseases / project Cystic fibrosis / project The porphyrias / Narcolepsy / frequent lung infections / diseases / Epilepsy / difficult-to-treat epilepsies / skin diseases / neuromuscular disorders / muscular dystrophy / mucoviscidosis / chronic disorder / rare nervous system disorders / sinus infections / selected diseases / porphyrias / Cystic Fibrosis / porphyria / project Wilson's disease / Landau- Kleffner syndrome / adolescent epilepsy / disease / rare disease / hepatolenticular degeneration / acute porphyrias / recessive multi-system genetic disease / non-acute porphyrias / /

MedicalTreatment

antibiotics / liver transplant / /

Organization

Italy Leiden University Medical Center / Medizinische Hochschule Hannover / Italy KING'S COLLEGE HOSPITAL / University of Bologna / Universität Würzburg / French national reference centre / National Institute of Environmental Health / University of Lyon / Bulgaria NEUROPED Specification / Vilnius University / Bulgarian Neuromuscular Disorders Society / European Union / Children Hospital / NHS / Italy European Organisation for Rare Diseases / France Good Clinical Practice Alliance / University College London / Hungary Rehabiliterings Center for Muskelsvind / Italy Haukeland University Hospital / Netherlands Karolinska University Hospital / University of Newcastle / Department of Paediatric and Adolescent Medicine of UKL-FR / French National Centre of Wilson / Charles University Prague / Cardiff SAS Porphyria Service / Division of Neuropaediatrics and Muscle Disorders / Poznan University of Medical Sciences in Poland / National Rehabilitation Centre for Neuromuscular Diseases / Spain University Medical Centre Ljubljana / /

Person

Joan de Déu / Rudolf Korinthenberg / Carole Beaumont / Jean-Marc Trocello / Thomas O.F. Muller-Bellingrodt / Alexis Arzimanoglou / /

Position

Project leader / medical director / outside specialist / und Jugendmedizin Project Leader / /

Technology

http / E-health technologies / /

URL

eurowilson.org / http /

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