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Erythropoietic protoporphyria / Variegate porphyria / Acute intermittent porphyria / Porphyrias / Health / Medicine


December, 2009 Merry Christmas and Happy Holidays! The American Porphyria Foundation is your foundation. Thank you for your generosity,
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Document Date: 2014-02-26 18:32:50


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City

Houston / Otaki / Dublin / Galveston / Boston / Port Elizabeth / /

Company

ADP / EPP / Cantigny Research Foundation Inc. / the New York Times / Kasirer Consulting / Amazon.com / /

Continent

Europe / Africa / /

Country

Switzerland / Netherlands / South Africa / United Kingdom / New Zealand / United States / Ireland / /

Currency

USD / /

Event

Person Communication and Meetings / /

Facility

Porphyria Centre / University of Texas Medical Branch / Weill Medical College / University of Alabama-Birmingham / Cornell University / Cape Town’s Groote Schuur Hospital / Carolinas Medical Center / Camp Kaufman / /

Holiday

Christmas / /

IndustryTerm

lasting network / chemical processes / web address / Certain intra-uterine devices / publications-and-products / /

MedicalCondition

rare diseases / seizures / similar illness / desperate porphyria / prostate cancer / illness / liver disease / abdominal pain / Debra’s illness / different porphyrias / Acute Porphyria / neurofibromatosis / reliable porphyria / diseases / same undiagnosed sickness / epilepsy / Erythropoietic Protoporphyria / hemochromatosis / noted porphyria / best known porphyria / NOT an acute porphyria / fibromyalgia pain / Huntington’s Disease / porphyrias / common genetic disease / cystic fibrosis / cutaneous porphyrias / porphyria / back pain / blisters / disease / rare disease / Variegate Porphyria / pain / acute porphyrias / complicated disease / grave diseases / /

MedicalTreatment

oral contraceptives / contraception / Birth Control / liver transplant / physiotherapy / /

Organization

General Assembly / Swiss Porphyria Association / University of Texas Medical Branch / Distinguished Service / General Clinical Research Center / FDA office of Orphan Products Development / American Porphyria Foundation / University of Alabama-Birmingham / Senate / Weill Medical College / Canadian Porphyria Foundation / Carolinas Medical Center in Charlotte / U.S. House / Porphyria Center / Cantigny Research Foundation / American Association for the Study of Liver Diseases / FDA / Cornell University in New York / APF Scientific Advisory Board / National Institute of Health / AASLD Distinguished Service / Cape Town’s Groote Schuur Hospital / South African VP / Congress / White House / National Institutes of Health / Centers for Disease Control / Food & Drug Administration / Scientific Advisory Board / NIH office of Rare Diseases Research / Porphyria Centre in Cape Town / Groote Schuur Hospital / Emergency Department / /

Person

Patricia Weiss / Blair Bregmen / Carole E. Kuklewski / Oz Many / Richard Dugger / James Kushner / Dolores M. Brazas / Robert E. Christensen / Fagie (Kubersky) Toback / Vince Kuklewski / Edward Geffner / Brendan McGuire / Lisa Sanders / Jann Steelhammer / Tarun Narang / Karl Anderson / Nita Busby / God / Chelsea Kancsar / Desiree Photo / Linda E. Armi / Mira / Judy Pereira / Craig Leppert / Michael Drew / Charles Johnson / Herbert Bonkovsky / Nicole / Geraldine Williams / Maria Gonzales / Joan Steelhammer / Carolyn Blue / Carol Coons / Steven Shedlofsky / Desiree Lyon / Monica Foley Fleegel / Debra True / Lori Woods / Wesley J. Brazas / Richard D. Levere / Carol L. Smith / Steve Stevens / April Photo / Robert Desnick / Oz Show / Joseph Bloomer / Francis S. Collins / Louis J. Mauro / Arthur Danko / Terri Kitcoff / Yvette Strange / Frances Mauro / Sarah Litchfield / Montgomery Bissell / Desiree Lyon Howe / Geoffrey Dean / Charlotte Beck / Sandra Bolding / Marianne Danko / Abril Hernandez / Lisa Kancsar / Alda Davis / Birtie M. Prine / Terri Paynter / Freedom / Elva Denger / Jackson Williams / Norma Lambert / Ellen Joyce / Stephen Kancsar / James Smuczynski / Tracy / /

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Position

porphyria specialist / president / physician / Director of the National Institutes of Health / Professor / VP / Editor / Rare Disease Advocate / Scientist / Dean / private and state physician / team and senior-year President / chairman / Director / VP mutation / nurse / specialist / /

Product

Paxil / /

ProvinceOrState

Alabama / Maine / Texas / North Carolina / /

PublishedMedium

the New York Times / /

TVShow

The Dr. Oz Show / /

Technology

Human Genome / http / /

URL

www.porphyriafoundation.com / http /

SocialTag