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Collagen disease / Osteogenesis imperfecta


The Role of a Patient Organisation in a Scientific Project - an example of collaboration between a patient organisation and a scientist Ingunn Westerheim, president of NFOI and Lena Lande Wekre, MD, PhD NFOI: leder@nfoi
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Document Date: 2014-05-13 08:37:13


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File Size: 335,60 KB

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Company

NFOI / TRS / /

/

Event

Business Partnership / /

IndustryTerm

resource centre offering services / patient / /

MedicalCondition

rare congenital disorders / osteogenesis imperfecta / /

Organization

Patient Organisation / Norwegian Osteogenesis Imperfecta Association / Sunnaas Rehabilitation Hospital NORWEGIAN OSTEOGENESIS IMPERFECTA ASSOCIATION TRS National Resource Centre for Rare Disorders / /

Person

Lena Lande Wekre / Ingunn Westerheim / /

Position

scientist / president / scientist and the president / /

Technology

research protocol / /

URL

www.sunnaas.no/trs / www.nfoi.no / /

SocialTag