Capital One Card / GoodSearch / GoodShop You / Garrett / GoodShop / Manitowoc / Harley Davidson / Facebook / Google / /
Continent
America / Europe / /
Country
Norway / Finland / Germany / /
Currency
USD / cent / / /
Event
Person Communication and Meetings / Funding / Business Partnership / /
Facility
Saint Barnabas Institute of Neurology / Chicago Marriott Oak Brook Hotel / Camp New Hope / University of Rochester / Elks Lodge / Roebuck Elks Lodge / Children’s Hospital / Camp New Hope Located / Faith’s Lodge / Faith's Lodge / /
emergency treatment / gene therapy / Enzyme replacement therapy / first aid / /
Movie
Happy New Year / /
Organization
Batten Disease Diagnostic and Clinical Research Center / University of Rochester / Batten Disease Support & Research Association / Research Association / BDSRA National Office / Epilepsy Foundation / Batten Disease Support and Research Association / NYU Comprehensive Epilepsy Center / Bradt Family Society / Hayden’s Batten Disease Foundation / Midwest Chapter / Wooden Nickel Foundation / Saint Barnabas Institute of Neurology and Neurosurgery / Board of Directors of the Batten Disease Support / Ulster Orchestra / NYU School of Medicine / University of Iowa / Harris Road Middle School / Blue Springs South High School / UCLA’s Mattel’s Children’s Hospital / /
Person
Sheldon Hanson / RYAN FARET / Rebecca Parsons / Diane Phelan / Beverly Davidson / EDDIE MAJESKI / John Suedbeck / Robert Cooper / Richard Meyer Donna Fitzgerald / LESLEY CAROL / Ray Seely / Julie Izen / Chris Gaines / Mycophenolate Mofetil / DANIEL BREUER / Jonathan Mink / Scott Stacey / CELIA BETZ / Cory Vaudt / Amy K. Lombardi / John Hardin / Lisa Simon / Nancy Kapper / Joseph Anderson / Robert Gunderson / Jennifer Majeski / LYNN MAUREEN BLAKE / Cal Neva / Robi Lipscomb / Eric Ries / DAVID LIPSCOMB / COURTNEY GUNTHER / Jerome Voeller / Sarah Woerner / Andrea Allio / Robert Sieloff / Carol Bobby / John Pelle / Amy Lombardi / Gordon Fong / James Thomas / Gary Thomas / Taylor Hudson / CURTIS ANTHONY / LORENA JOHNSTON / Rita Heitman / Devinksy / Alison Cochrane / Robert Moore / Marilyn Gulotta / Gary Hufton / Steven Ennis / Hope Located / Margaret Kerr / THOMAS CHRISTIAN ANDERSON / Sharon Koehler / Jackie Sloan / RYAN COOPER / MEGAN DEPEW / Ben Decter / ASHER NIKOLAJEVS / Randy Dahl / Lucille Fitzer / JEFFREY BALZER / Richard Machczynski / Annetje Barents van Rotmer / Billy McMenamer / Vivian Jeffrey / Glenda Williams / David Lamb / Eddie Rodriguez / Karen Kishpaugh / Deborah Kompier / Martin Crimmins / DOMINIC CERAVONE / KELSIE HARDIN / Nicholas Wellner / Ardyce Bergeson / Dave Richert / Rager Mitzel / Hope Harley Ride / Thomas Stratton / Sanford Black / David Dahl / Albert Andriessen Bradt / Josh Smerdel / Florence Petri / Gary Taylor / ALLIE GALEN / Pamela Yourish / TYLER ALLMAN / Rose Marie Mathis / GARY HEITMAN / JESSICA HYNIE / Kathryn Heitman / AMANDA FITZGERALD / Yong Hong Chen / Dean Bucalos / TRACY GUERTNER / DAN HUDSON / LULU CALDERON / Robert Wyse / K.B. Fackler / JULIE KLEE / CLIFFORD DAHL / BILL FARRELLY / Michael Hoffman / HOWARD BERGESON / HANNAH CAULFIELD / Ambrose Evetts / William Erven / Leo Weilmann Carol Jones / Shelly Rice / CASEY PETRI / ASHLEY LYNN KIEFER / Blue Springs / Jared Kennedy / William Murphy / Shauna / David Luce / James Gustafson / DAVID R. HUDSON / Robert Welch / Reginald Proulx / BRETT KILLEN / Frederick Marshall / Michael Chang / NIKKI DAVIS / Becky Lucas / Gerald Gassel / Elna Faret / Tina Martinez / JENNA HILL / NOAH JOHNSON / JEFFREY MICHAEL BOBBY / Brian Anderson / Wayne Kiefer / Sharon Depoi / David Zielke / Matthew Clifton / DEREK ALLBEE / MIKE CARBREY / Gerald Deloy / Kathe Hulfeld / Tracy Ceravone / Dennis Dahl / John Grob / Alan / James Lloyd / R. Tolliver Linda Smith / Randall Latham / Ronald Huston / JAMIE MITZEL / Douglas Klee / Bernard Bennett / Susan Dahl / Jennifer Van Houtan / Russell Shetler / Hayden / Martin Katz / Jeffrey Bolick / Susan Dushek / CAROLYN KENNEDY / M. Delhey / Jacquelyn Reichardt / David Fey / ELISABETH JOHNSON / Richard Galitz / Jayne Gassman / JULIA LEFFLER / ZACHARY AHLSON / John Burnside / Laura Apel / Maryalice Blake / Mason / Heather Allman / Charles Leffler / Ruth Hardin / David Johnson / Galen Hora / Gary Jones / Adina Ryan / Glenn Ostermann / Ronald Andrews / Robert Hurley / Harold Soma / Kathryn A. O'Hara / CLAY CUNNINGHAM / Michael Guertner / Michael Caulfield / Sheila Nickens-Thomas / Clarissa Joyce / Grant Two / Rhiannon Bates / Nancy Carney / Jan Carter Hollingsworth / Jonathon Cooper / / /
Position
physician / professor of internal medicine / Professor / upcoming fundraiser / speaker / neurologist / fundraiser / classroom assistant / CYNDI McALPINE Head / Cause This dog walk fundraiser / Nurse / Director of Development Email / Director of Development / local consultant eye specialist / LSW Coordinator / Medical Scientist / school nurse / Nurse Manager / softball tournament fundraiser / postdoctoral researcher / lead investigator / Illuminator / estate planning attorney / Manager in child neurology / artist and advocate / /
Product
Soma / CellCept / /
ProvinceOrState
Ohio / Wisconsin / Ashe County / Iowa / Alabama / New York / North Carolina / /
PublishedMedium
Nature Medicine / /
Region
northern Europe / /
SportsEvent
Batten Disease First Annual Softball Tournament / /
“A light in a world of darkness” January 2010 Volume 21, Number 1 Inside this Issue 1 Important News