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Erdheim–Chester disease
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#	Item
1	ECD Literature Search (found with www.PubMed.gov) This list is an attempt at capturing abstracts for published papers regarding Erdheim-Chester Disease. It is meant for awareness purposes only. It is updated periodically Add to Reading List Source URL: erdheim-chester.org Language: English - Date: 2015-09-09 10:43:21
2	ECD Global Alliance www.erdheim-chester.org [removed] NIH “Clinical and Basic Investigations into Erdheim-Chester Disease” Study Principal Investigator: Juvianee I. Estrada-Veras, M.D. Add to Reading List Source URL: www.erdheim-chester.org Language: English - Date: 2011-10-01 06:15:15 Nursing research Medical informatics Bethesda Maryland Cancer research Medical record Erdheim–Chester disease Methadone Medicine Health National Institutes of Health
3	ECD Global Alliance – www.erdheim-chester.org ECD Case Locations (Last Updated May 29, 2014) This list represents the number of patients who have registered with the ECD Global Alliance. We believe there are other Add to Reading List Source URL: www.erdheim-chester.org Language: English - Date: 2014-06-13 09:50:50 Syndromes Medicine Health Erdheim–Chester disease Histiocytosis
4	I Have What? The following was provided by someone who has been living with ECD for a while. He thought it might be helpful to new patients if there was something to give newly diagnosed patients so they might know how t Add to Reading List Source URL: www.erdheim-chester.org Language: English - Date: 2013-12-18 12:33:00 Syndromes Medicine Health Erdheim–Chester disease Histiocytosis
5	ECD Literature Search (found with www.PubMed.gov) This list is an attempt at capturing abstracts for published papers regarding Erdheim-Chester Disease. It is meant for awareness purposes only. It is updated periodically Add to Reading List Source URL: www.erdheim-chester.org Language: English - Date: 2014-06-13 09:51:34 Rare diseases Erdheim–Chester disease Syndromes Non-Langerhans cell histiocytosis Langerhans cell histiocytosis Jakob Erdheim Histiocyte All In Hairy cell leukemia Health Histiocytosis Medicine
6	Request for Letters of Intent The ECD Global Alliance is soliciting Letters of Intent for funding of research projects focused on the study of Erdheim-Chester Disease. LOI Form is Attached Number of Grants to be Awarded Add to Reading List Source URL: www.erdheim-chester.org Language: English - Date: 2014-02-02 14:04:31 Erdheim–Chester disease Syndromes Clinical research Pharmaceutical industry All In Non-Langerhans cell histiocytosis Clinical trial Attachment theory Health Histiocytosis Medicine
7	ECD Networking Directory Overview Attached you will find an ECD Directory Registration form. You can use this form to record information you would like to share with those affected by ECD. The information you include wil Add to Reading List Source URL: www.erdheim-chester.org Language: English - Date: 2010-09-30 10:24:03 Medicine Health Email Erdheim–Chester disease
8	Julien Haroche, MD, PhD / Conversation with Member of ECD Global Alliance 17-Sep-2008 in Paris, France The following information is from Dr. Julien Haroche at Groupe Hospitalier Pitie-Salpetriere in Paris, France. This i Add to Reading List Source URL: www.erdheim-chester.org Language: English - Date: 2010-09-30 10:24:02 Syndromes ER Medicine Health Erdheim–Chester disease Histiocytosis
9	ERDHEIM CHESTER DISEASE: CLINICAL PHENOTYPE AND OUTCOME A MULTICENTRE SURVEY ECD001 Information to send for study follows. Information can be sent on CD/DVD or as ‘paper’ copies. Please send all relevant information Add to Reading List Source URL: www.erdheim-chester.org Language: English - Date: 2010-12-31 09:28:31 Erdheim–Chester disease Histiocytosis Syndromes Medical ultrasound Echocardiography Vaglio X-ray computed tomography Bone scintigraphy Pulmonology Medicine Health Medical imaging
10	A Pilot Study in the Treatment of ECD A pilot study in the treatment of Erdheim-Chester Disease is being conducted by Dr. Augusto Vaglio of Parma, Italy. He is studying the use of sirolimus (a drug most often used by tr Add to Reading List Source URL: www.erdheim-chester.org Language: English - Date: 2010-09-30 10:24:02 Immunosuppressants Rare diseases Syndromes Sirolimus Erdheim–Chester disease Immunosuppressive drug Kidney transplantation Prednisone Tacrolimus Medicine Health Macrolides