NEWS FROM NORD AN UPDATE FOR OUR MEMBERS AND FRIENDS FALL[removed]I AM 1 IN 10

First Page		Document Content
Date: 2012-12-18 11:57:21 Rare Disease Day Rare diseases European Organization for Rare Diseases Orphan drug Genetic disorder Siren interactive National Organization for Rare Disorders Disease Adiposis dolorosa Health Medicine Epidemiology		NEWS FROM NORD AN UPDATE FOR OUR MEMBERS AND FRIENDS FALL[removed]I AM 1 IN 10 Add to Reading List Source URL: rarediseases.org Download Document from Source Website File Size: 1,74 MB Share Document on Facebook

	TOWARDS AN RDI CONFERENCE PROGRAM Lisa Phelps, MPH Director of Strategic Planning and Project Development National Organization for Rare Disorders (NORD) Member of the Council of RDI DocID: 1uYRx - View Document
	APPENDIX A DocID: 1ggRJ - View Document
	Rare Disease DayJoin MassBio, VHL Alliance, member companies, patient groups, patients and legislators to recognize Rare Disease Day. Friday, February 28th 11 a.m. DocID: 18xb0 - View Document
	TOGETHER WE ARE STRONG CAP THE CO-PAY ON SPECIALTY TIER MEDICINES Several states are considering legislation to tackle high cost-sharing for specialty and orphan medications. Currently, people with rare diseases are forc DocID: 105bx - View Document
	3086100169545001237615[removed]FOR IMMEDIATE RELEASE DocID: Z1vh - View Document