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National Organization for Rare Disorders
Results: 62

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1	TOWARDS AN RDI CONFERENCE PROGRAM Lisa Phelps, MPH Director of Strategic Planning and Project Development National Organization for Rare Disorders (NORD) Member of the Council of RDI Add to Reading List Source URL: download2.eurordis.org.s3.amazonaws.com Language: English - Date: 2018-05-30 08:23:56
2	APPENDIX A Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2015-06-19 16:23:28 Canadian Organization for Rare Disorders National Association of Anorexia Nervosa and Associated Disorders Cord
3	Rare Disease DayJoin MassBio, VHL Alliance, member companies, patient groups, patients and legislators to recognize Rare Disease Day. Friday, February 28th 11 a.m. Add to Reading List Source URL: www.massbio.org Language: English - Date: 2014-03-12 17:41:27 Hermansky–Pudlak syndrome Adrenoleukodystrophy National Organization for Rare Disorders Patient advocacy Patient Health Rare diseases Rare Disease Day
4	TOGETHER WE ARE STRONG CAP THE CO-PAY ON SPECIALTY TIER MEDICINES Several states are considering legislation to tackle high cost-sharing for specialty and orphan medications. Currently, people with rare diseases are forc Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2015-02-12 09:36:39 Rare diseases Rare Disease Day National Organization for Rare Disorders Health
5	3086100169545001237615[removed]FOR IMMEDIATE RELEASE Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2015-01-30 15:51:17 Rare Disease Day Rare diseases European Organization for Rare Diseases National Institutes of Health National Organization for Rare Disorders Disease Global Genes Project Orphan drug Health Medicine Epidemiology
6	116 STAT[removed]PUBLIC LAW[removed]—NOV. 6, 2002 Public Law[removed]107th Congress Add to Reading List Source URL: www.gpo.gov Language: English - Date: 2013-05-02 13:56:01 Pharmacology Pharmaceuticals policy Orphan Drug Act Orphan drug Food and Drug Administration Pharmaceutical industry Rare disease Pharmaceutical drug National Organization for Rare Disorders Health Pharmaceutical sciences Medicine
7	State House Sample Press Release FOR IMMEDIATE RELEASE Rare Disease Advocates Commemorate Worldwide Awareness Day at the (STATE) State House (CITY, STATE, DATE[removed]Join rare disease patients, caregivers and other healt Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-11-04 11:49:41 Rare Disease Day Medical terms European Organization for Rare Diseases National Institutes of Health Rare diseases Disease Patient advocacy National Organization for Rare Disorders Global Genes Project Health Medicine Epidemiology
8	DATE GOVERNOR’S NAME STATE CAPITOL BUILDING Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-11-04 12:10:14 Rare disease National Institutes of Health Rare Disease Day National Organization for Rare Disorders Canadian Organization for Rare Disorders Health Medicine Epidemiology
9	Orphan Products Development CAPT Jeffrey Fritsch, .R.Ph. January 23, 2009 Add to Reading List Source URL: www.fda.gov Language: English Pharmacology Pharmaceuticals policy Drug discovery Orphan drug Food and Drug Administration Orphan Drug Act Rare disease National Organization for Rare Disorders New Drug Application Pharmaceutical sciences Health Clinical research
10	Emerging strategies for access to innovative therapies: Coverage and funding Innovative approaches for access to innovative therapies Canadian Organization for Rare Disorders Conference Tania Stafinski & Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2009-04-08 12:52:35 Health care Primary care National Health Service Health economics National Institutes of Health Alternative medicine Evidence-based medicine Patient safety organization Medicine Health Nursing research