Rare Disease DayJoin MassBio, VHL Alliance, member companies, patient groups, patients and legislators to recognize Rare Disease Day. Friday, February 28th 11 a.m. - National Organization for Rare Disorders - Document - PDFSEARCH.IO

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	Rare Disease DayJoin MassBio, VHL Alliance, member companies, patient groups, patients and legislators to recognize Rare Disease Day. Friday, February 28th 11 a.m. Add to Reading List Document Date: 2014-03-12 17:41:27 Open Document File Size: 240,80 KB Share Result on Facebook City Boston / / Company Rare Disease Day 2014 Join MassBio / Hermansky-Pudlak Syndrome Network Inc. / VHL Alliance / / / Facility Doric Hall / Great Hall / Nurses Hall / / IndustryTerm communications@massbio.org / / MedicalCondition rare diseases / rare disease / Adrenoleukodystrophy / / Organization Massachusetts State House / Rare Disease United Foundation / National Organization / State House / / Person Markey Sarah Cooke / Paul Heroux / Ilene Sussman / Pamela Gavin / Marjorie Decker / Jenn McNary / Ray Flynn / Patricia Weltin / Olivia Weltin / Biotech Caucus / Karen Spilka / Carmen Camacho / Sandi Carter Brown / / Position Chief Operating Officer / Mayor / Muscular Dystrophy Speaker / Executive Director / Coordinator / Speaker / Co-Chair / advocate / industry advocate / Senator / advocate Speaker / Executive Director / VHL / / ProvinceOrState Massachusetts / / SocialTag Hermansky–Pudlak syndrome Adrenoleukodystrophy National Organization for Rare Disorders Patient advocacy Patient Health Rare diseases Rare Disease Day

Rare Disease DayJoin MassBio, VHL Alliance, member companies, patient groups, patients and legislators to recognize Rare Disease Day. Friday, February 28th 11 a.m.Add to Reading List