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Date: 2014-03-12 17:41:27Hermansky–Pudlak syndrome Adrenoleukodystrophy National Organization for Rare Disorders Patient advocacy Patient Health Rare diseases Rare Disease Day | Rare Disease DayJoin MassBio, VHL Alliance, member companies, patient groups, patients and legislators to recognize Rare Disease Day. Friday, February 28th 11 a.m.Add to Reading ListSource URL: www.massbio.orgDownload Document from Source WebsiteFile Size: 240,80 KBShare Document on Facebook |
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YEAR IN REVIEW Global Genes™ is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, advocates, caregivers, and key rare disease stakeholders. Each day, GlobalDocID: 1utgu - View Document | |
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Rare-disease-day; 28. Februar 2013 Actelion launcht eine neue Informationsplattform für Lungenhochdruck! Rechtzeitig zum Tag der seltenen Erkrankungen am 28. Februar startet Actelion Österreich mit einer neuen InformatDocID: 1nrEs - View Document |