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Global Genes
Results: 55

#	Item
1	BECOMING AN EMPOWERED PATIENT: A Toolkit for the Undiagnosed Global Genes SWAN (Syndromes Without Add to Reading List Source URL: globalgenes.org Language: English - Date: 2015-02-05 16:42:00
2	Global transcriptomic analysis reveals candidate genes for diapause induction in the malt fly Chymomyza costata. Rodolphe Poupardin1, Vladimír Koštál1* Jaroslava Korbelová1, Jan Provazník1, Konrad Schöttner1, David Add to Reading List Source URL: zoo.prf.jcu.cz Language: English - Date: 2017-05-09 08:09:25
3	LEVERAGING A RARE DISEASE CENTER OF EXCELLENCE This toolkit is a follow up resource based on the Global Genes Webinar Leveraging a Rare Disease Center of Excellence that was originally webcast June 1, 2015. Add to Reading List Source URL: globalgenes.org Language: English - Date: 2015-07-02 11:25:48
4	2012 Global Genes \| RARE Project Year In Review Add to Reading List Source URL: globalgenes.org Language: English - Date: 2015-02-05 16:42:11
5	YEAR IN REVIEW Global Genes™ is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, advocates, caregivers, and key rare disease stakeholders. Each day, Global Add to Reading List Source URL: globalgenes.org Language: English - Date: 2016-06-14 17:51:44
6	Advocating for Your Child with a Rare Disease at Their School Global Genes The New England Genetics Collaborative Genetics Education Materials for School Success Parent Information Center on Special Education Add to Reading List Source URL: globalgenes.org Language: English - Date: 2015-08-19 18:08:48
7	Edelman-DiagnosisDoesntHaveToBeRareLogoV3 Add to Reading List Source URL: www.shire.co Language: English - Date: 2015-09-14 17:42:58 Health Medicine Epidemiology Medical terminology Rare diseases Medical diagnosis Global Genes European Organisation for Rare Diseases Orphan drug Disease Rare Disease Day Draft:Rare Cancers
8	SERMOsolves: Rare Disease Initiative It is estimated that 350 MILLION Add to Reading List Source URL: www.sermo.com Language: English - Date: 2015-09-30 12:42:31 Epidemiology Rare disease Global Genes Sermo Medical diagnosis Medicine Patient advocacy
9	YEAR IN REVIEW Global Genes™ is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, advocates, caregivers, and key rare disease stakeholders. Each day, Global Add to Reading List Source URL: globalgenes.org Language: English - Date: 2016-02-18 20:20:13
10	2012 Global Genes \| RARE Project Year In Review Add to Reading List Source URL: globalgenes.org Language: English - Date: 2015-02-05 16:42:11 Global Genes Project Medical ethics Rare Disease Day Patient advocacy Breast cancer awareness Rare diseases Health Medicine Epidemiology