|Barb Vorpahl FDA Presentation January 12, 2010 Good Afternoon. My name is Barb Vorpahl, and I am chair of the National Niemann-Pick Disease Foundation. My husband and Gary and I also had a daughter, Stacey who died at t - Miglustat - Document - PDFSEARCH.IO

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	\|Barb Vorpahl FDA Presentation January 12, 2010 Good Afternoon. My name is Barb Vorpahl, and I am chair of the National Niemann-Pick Disease Foundation. My husband and Gary and I also had a daughter, Stacey who died at t Add to Reading List Document Date: 2010-01-14 15:59:00 Open Document File Size: 53,03 KB Share Result on Facebook Country United States / / Currency USD / / IndustryTerm treatment for Niemann-Pick Type C Disease / social services / school systems / insurance / / MedicalCondition C Disease / pain / hurts / rare disorder / disease / cataplexy / another seizure / well known diseases / / Organization FDA / National Niemann-Pick Disease Foundation / / Person Stacey / Barb Vorpahl / / Position chair / board chair / representative / board member / / Product Zavesca / make getting Zavesca / / SocialTag Medicine Neurodegenerative disorders Niemann–Pick disease Miglustat Cataplexy Health Lipid storage disorders Rare diseases

|Barb Vorpahl FDA Presentation January 12, 2010 Good Afternoon. My name is Barb Vorpahl, and I am chair of the National Niemann-Pick Disease Foundation. My husband and Gary and I also had a daughter, Stacey who died at tAdd to Reading List