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Cardiofaciocutaneous syndrome / National Institutes of Health / Rare disease / National Organization for Rare Disorders / Health / Medicine / Genodermatoses


National Organization for Rare Disorders (NORD), with funding by the patient organization, Cardiofaciocutaneous (CFC) International announces Research Seed Money for one, one-year grant ($30,000) for
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Document Date: 2013-03-25 23:47:14


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Currency

USD / /

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IndustryTerm

therapy of rare “orphan” diseases / /

MedicalCondition

rare genetic disorder / rare diseases / CFC syndrome / rare disorders / deficiency / Cardiofaciocutaneous Syndrome / cognitive impairment / /

MedicalTreatment

gene therapy / surgery / /

Organization

FDA / National Institute of Health / Telephone Researcher’s Fax Institution / Food and Drug Administration / Email Subscription Service / NIH Recombinant DNA Advisory Committee / Institutional Review Board committee / National Organization for Rare Disorders / /

Person

Stefanie Putkowski / /

Position

representative / Research Program Administrator / Mailing Address City/State/Zip Country Researcher / Researcher Researcher / Email Researcher / /

ProvinceOrState

Connecticut / /

Technology

gene therapy / Recombinant DNA / /

SocialTag