August 6, 2013 The Honorable Patrick J. Toomey 248 Russell Senate Office Building Washington, DC[removed]Dear Senator Toomey: On behalf of the 30 million men, women and children in the U.S. affected by the estimated 7,300 - National Organization for Rare Disorders - Document - PDFSEARCH.IO

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	August 6, 2013 The Honorable Patrick J. Toomey 248 Russell Senate Office Building Washington, DC[removed]Dear Senator Toomey: On behalf of the 30 million men, women and children in the U.S. affected by the estimated 7,300 Add to Reading List Document Date: 2013-09-26 15:14:25 Open Document File Size: 235,05 KB Share Result on Facebook City Washington / DC / / Country United States / / / Facility Russell Senate Office Building / / / IndustryTerm pharmaceutical fee / rare disease therapies / annual pharmaceutical fee / annual pharmaceutical fee provision / therapies for all rare disorders / / MedicalCondition rare diseases / rare disorders / rare disease / / Organization National Organization for Rare Disorders / / / Position Peter L. Saltonstall President and CEO / Senator / / ProgrammingLanguage DC / / Technology diagnostic tests / / SocialTag Pharmaceuticals policy Pharmacology Rare disease National Organization for Rare Disorders Pharmaceutical sciences Pharmaceutical drug Patient Protection and Affordable Care Act Law Orphan Drug Act Health

August 6, 2013 The Honorable Patrick J. Toomey 248 Russell Senate Office Building Washington, DC[removed]Dear Senator Toomey: On behalf of the 30 million men, women and children in the U.S. affected by the estimated 7,300 Add to Reading List