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Annual Report 2012 Dear NORD Members and Friends: We are proud to present this end-of-year report to you briefly
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Document Date: 2013-10-28 15:42:10

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City

Philadelphia / Orlando / San Francisco / Chicago / /

Company

NORD / First-Ever Public-Private Partnership / Compassionate Allowances Program As Social Security / /

Continent

Europe / /

Country

United States / Canada / /

Currency

USD / /

Facility

Net building / FDA campus / /

IndustryTerm

medical devices / Online Platform / healthcare reform / lifetime health insurance caps / health insurance option / healthcare / /

MedicalCondition

rare diseases / disease / rare disease / extremely disabling diseases / specific rare diseases / diseases / entire rare disease / /

MedicalTreatment

gene therapy / /

Organization

U.S. Several / Scientific and Medical Advisory Committee / Social Security Administration / Congress / National Institute of Health / Medtronic Foundation / NORD’s mission / MDIC Board of Directors / FDA / Corporate Council / National Society of Genetic Counselors / Canadian Organization for Rare Disorders / European Organisation for Rare Diseases / /

Person

John Barrasso / E. Michael D. Scott / Peter L. Saltonstall / Margaret Hamburg / Michael Astrue / /

Position

Chair / Board of Directors Advocacy/Public Policy The / President and CEO / Commissioner / model for accelerated development / Physician / /

ProvinceOrState

Maryland / /

PublishedMedium

the European Journal / /

Technology

gene therapy / /

URL

www.rarediseases.org / www.nordphysicianguides.org / /

SocialTag