American Sleep Apnea Association Association for Frontotemporal Degeneration / Association for Glycogen Storage Disease CADASIL Association Canavan Research Illinois Children / International Global Foundation / America Hypoparathyroidism Association / Alport Syndrome Foundation / International Histiocytosis Association HLRCC Family Alliance Huntington's Disease Society / International Pemphigus & Pemphigoid Foundation Intracranial Hypertension Research Foundation / Glycogen Storage Disease CADASIL Association Canavan Research Illinois Children's PKU Network Congenital Hyperinsulinism International Council For Bile Acid Deficiency Diseases Cure PSP Cystinosis Foundation Dravet Syndrome / National Organization for Rare Disorders / FDA / Budget Conference Committee / Hannah's Hope Fund Hemophilia Federation / National Niemann-Pick Disease Foundation National Organization for Rare Disorders National PKU Alliance National Tay-Sachs / Foundation Dystrophic Epidermolysis Bullosa Research Association of America Erythromalalgia Association Fabry Support / /
Person
Ryan / Diane Edquist Dorman / / /
Position
Chairman / Co-Chair / Vice President / Public Policy / Chairwoman / Vice President / Public Policy / /